There is a facebook group with the latest news on the Visual Snow research study, news stories about Visual Snow, symptom descriptions, etc. Only.
This group is not a support group, but a place for information.
There is far between new news on Visual Snow, but any new news on any of these subjects, will be posted here as soon as it arrives.

Link to the group:
https://www.facebook.com/groups/visualsnownewsfeed/