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the worse symptom and the one you would want to disapear the most.

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laura87	the worse symptom and the one you would want to disapear the most.		Lead	[-]
Regular Visitor Posts: 100 02/07/12 4:51 AM	Remove this ad If you could make one symptom vanish, what would it be. Mine would be the static, because its constantly there and I can't even close my eyes to escape it like I can with the other visuals. My after images are very bad at the moment too but for some reason I can handle them better. I have bad ghosting images as well. I mean really bad even to the point of street signs being double but I can ignore and accept them better too. I just hate the static!!!! Especially in the dark.
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MasterOfTrails		#1	[url]	[-]
Newbie Posts: 16 02/07/12 8:25 AM	Afterimages. I never want to see them again, they fuck (sorry...) up my whole vision all day long. Static is ok for me, see it just in the dark. Its so annoying to see bright things with trails and so on. Hate this like hell, wouldnt give this to my strongest enemy.
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laura87		#2	[url]	[-]
Regular Visitor Posts: 100 02/07/12 9:07 AM	Do you not see the static on blank walls and surfaces or dark objects or in the sky even?
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MasterOfTrails		#3	[url]	[-]
Newbie Posts: 16 02/07/12 10:52 AM	Ok let me take a look at my furniture standing 5 metres to the right of me. Hmm, its very subtile. If I dont look very closely, I dont notice the static (my snow is colored and completely gone when I'm outside and sunlight shines). So its no problem for me. But the afterimages are really big and bright and mixed negative with positive afterimages. For me, they r everywhere and everytime.
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IanKC		#4	[url]	[-]
Posts: 2955 02/07/12 2:15 PM Administrator	For me, definitely the brain fog. I'm not entirely sure whether it is related to the visuals themselves or not, though. But quite a few other people on this and other forums report it as a symptom. http://www.visualsnow.com \| Lots of information on Visual Snow http://www.iancasey.com \| My blog
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Terrier		#5	[url]	[-]
Newbie Posts: 16 02/07/12 2:58 PM	For me it'd probably be the ear problems (hearing loss/tinnitus) if they're connected to everything else. Mainly 'cos music was always my escape in life so I'd find it easier to cope with everything else if I at least had that. My visual symptoms (as bad as they probably are) would be way down the list as I find other things far more troublesome. Again, it's hard to know what's connected and what isn't though.
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Benny		#6	[url]	[-]
Registered User Posts: 4 02/07/12 3:18 PM	You should read my post in the 'I know the cause/ cure of visual snow' thread. Do you honestly think that writing on a forum about the symptom you'd like to get rid of most, is going to help? I hate to be a bit harsh, but I think I could call myself quite experienced with VS and I honestly think, that stressing over it and writing about it in general, doesn't help one bit. Rather than write about it, why don't you go out for a run? When you have a laptop or TV, that has a few broken pixels, do you stare at them the whole time, or the actual image behind? Focusing on your VS is hardly going to help. Get on with things, you're not going to get cured posting on forums, but you will probably take the edge of it by improving other things in your life. I have lurked on here a bit, but hesitated in joining as I understand with things like this, being upset and searching online does nothing - but increasing my life quality resulting in less stress, certainly did help my VS. Peace.
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21stlvlrogue		#7	[url]	[-]
Regular Visitor Posts: 1221 02/07/12 3:41 PM	Talking and writing about VS does not equal "stressing". In fact, if it wasn't for this forum I probably would have killed myself by now. The symptom I'd get rid of, definitely palinopsia. With the snow and massive halos around lights tied for second. My symptoms: 1. visual snow 2. palinopsia (afterimages) 3. trails 4. Increased Scheerer's phenomenon (aka blue field entropic phenomenon) seen vividly on virtually all white and blue backgrounds, indoors or out. 5. auras around lights 6. cell-like floaters 7. pulse in eyes (more visible against white backgrounds) 8. tinnitus 9. pulse in back of my head when exercising or after drinking hot liquids 10. red ear syndrome 11. bubbling in ears (especially when I first wake up) 12. crunchy sounds in ears when I make a swallowing motion Gradual onset, steadily progressive.
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laura87		#8	[url]	[-]
Regular Visitor Posts: 100 02/07/12 3:49 PM	21stlvlrogue wrote: Talking and writing about VS does not equal "stressing". In fact, if it wasn't for this forum I probably would have killed myself by now. The symptom I'd get rid of, definitely palinopsia. With the snow and massive halos around lights tied for second. I think it helps too to talk. Its good to know I'm not alone and compare symptoms etc. Because I'm in the early stages on this, I'm not over the anxious and depression yet. I haven't ajusted and feels like I never will be but some peoples posts on here have helped me cope a bit better. Can I just ask why you would have killed yourself? Was it just anxiety or the fact that you are visually impaired and don't want to be?
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21stlvlrogue		#9	[url]	[-]
Regular Visitor Posts: 1221 02/07/12 7:48 PM	I wanted to kill myself because not only do I have all this, it's also getting steadily worse. We've already had a few posters here that we have reason to believe committed suicide. Not everyone here is the same, VS is a non-specific symptom and some have mild, stable cases. But for those of us with degenerative cases, it's hard to get to a state of acceptance. By the time you start to accept your current symptom level, it has gotten worse and you have to start working for acceptance all over again. If I had a button that could make the entire Universe instantly not exist, I would press it. I can deal with the fact that we're all going to die eventually, but this whole people getting diseases thing and having to be miserable with the time we do have, well this is just shitty. A shitty, stupid world we live in. My symptoms: 1. visual snow 2. palinopsia (afterimages) 3. trails 4. Increased Scheerer's phenomenon (aka blue field entropic phenomenon) seen vividly on virtually all white and blue backgrounds, indoors or out. 5. auras around lights 6. cell-like floaters 7. pulse in eyes (more visible against white backgrounds) 8. tinnitus 9. pulse in back of my head when exercising or after drinking hot liquids 10. red ear syndrome 11. bubbling in ears (especially when I first wake up) 12. crunchy sounds in ears when I make a swallowing motion Gradual onset, steadily progressive.
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laura87		#10	[url]	[-]
Regular Visitor Posts: 100 02/07/12 8:18 PM	Remove this ad 21stlvlrogue wrote: I wanted to kill myself because not only do I have all this, it's also getting steadily worse. We've already had a few posters here that we have reason to believe committed suicide. Not everyone here is the same, VS is a non-specific symptom and some have mild, stable cases. But for those of us with degenerative cases, it's hard to get to a state of acceptance. By the time you start to accept your current symptom level, it has gotten worse and you have to start working for acceptance all over again. If I had a button that could make the entire Universe instantly not exist, I would press it. I can deal with the fact that we're all going to die eventually, but this whole people getting diseases thing and having to be miserable with the time we do have, well this is just shitty. A shitty, stupid world we live in. Believe people from this board killed themselves? I have read here about people saying they felt like it but not that they were going to do it.
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Alan		#11	[url]	[-]
Registered User Posts: 8 02/07/12 8:24 PM	The tinnitus. I wish the ringing would stop so I can suffer in peace... 21stlvlrogue wrote: I wanted to kill myself because not only do I have all this, it's also getting steadily worse. We've already had a few posters here that we have reason to believe committed suicide. You're starting to scare me now. I starting thinking the other day actually where some of these posters had gone to when I was looking through old posts. Some of them seemed frequent to the forum and then one day just stopped posting. Last Edited By: Alan 02/07/12 8:31 PM. Edited 3 times.
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21stlvlrogue		#12	[url]	[-]
Regular Visitor Posts: 1221 02/07/12 8:33 PM	There have been some regular posters here, most notably Needhelp, who expressed a suicidal ideation and shortly after disappeared. We aren't sure what happened to them, but this certainly gives us a "reason to believe" that they could have done it. I hope Needhelp is ok, but I really think he did it. I once wrote a depressing poem about VS here and he responded saying he felt the same way and each night he put a gun barrel in his mouth. My symptoms: 1. visual snow 2. palinopsia (afterimages) 3. trails 4. Increased Scheerer's phenomenon (aka blue field entropic phenomenon) seen vividly on virtually all white and blue backgrounds, indoors or out. 5. auras around lights 6. cell-like floaters 7. pulse in eyes (more visible against white backgrounds) 8. tinnitus 9. pulse in back of my head when exercising or after drinking hot liquids 10. red ear syndrome 11. bubbling in ears (especially when I first wake up) 12. crunchy sounds in ears when I make a swallowing motion Gradual onset, steadily progressive.
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2fries		#13	[url]	[-]
Regular Visitor Posts: 665 02/08/12 2:41 AM	Wow. Total-drama-island much? If I had to give one up it would be starbursts from headlights. They make driving at night hard, especially in the rain.
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KayleighSpeirsx		#14	[url]	[-]
Regular Visitor Posts: 45 02/08/12 5:22 PM	Why are people posting such crap? I mean seriously! It genuinely upsets me that people come on here and have a go at others for expressing how they are feeling. What else is the point in this forum then?! And if it keeps some of us sane, who are you to tell us to stop going on or accuse us of being over the top? Don't post if you're going to have a dig at someone who posted previously about how bad their life is because of this condition, maybe they're not making it all up to seem dramatic, maybe it is genuinely how they feel. I've had enough of this VS now, seriously has been getting worse for 4 years. 21stlvlrogue is right. No one, apart from people with VS whose condition is worsening and gradually deteriorating, will understand how that feels or what it does to your mental health and relationships with others. It ruins every aspect of normal life. Even leaving one environment to another, going for a shower from my dimly lit bedroom, for example, puts the fear of God into me because I know my vision is going to mess up and send me insane. People have different ways of coping; If it is getting it off their chest in forums like these then let them - let me - type away. Don't reply or comment if you've got a problem - start your own thread and let other like minded people comment on that! I promise I won't come piss on your parade Sorry, rant over, right now I'm the same as you Laura and the snow has increased to such an extent that I can see it everywhere, on any surface, at any time of day. And it's extremely thick and in dim lighting it's very hard to see through. I'm hoping this is a rough patch, as I go through these from time to time - sometimes months at a time - and my VS will return to its normal shitty state. Hope you're coping a bit better now
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laura87		#15	[url]	[-]
Regular Visitor Posts: 100 02/08/12 5:38 PM	KayleighSpeirsx wrote: Why are people posting such crap? I mean seriously! It genuinely upsets me that people come on here and have a go at others for expressing how they are feeling. What else is the point in this forum then?! And if it keeps some of us sane, who are you to tell us to stop going on or accuse us of being over the top? Don't post if you're going to have a dig at someone who posted previously about how bad their life is because of this condition, maybe they're not making it all up to seem dramatic, maybe it is genuinely how they feel. I've had enough of this VS now, seriously has been getting worse for 4 years. 21stlvlrogue is right. No one, apart from people with VS whose condition is worsening and gradually deteriorating, will understand how that feels or what it does to your mental health and relationships with others. It ruins every aspect of normal life. Even leaving one environment to another, going for a shower from my dimly lit bedroom, for example, puts the fear of God into me because I know my vision is going to mess up and send me insane. People have different ways of coping; If it is getting it off their chest in forums like these then let them - let me - type away. Don't reply or comment if you've got a problem - start your own thread and let other like minded people comment on that! I promise I won't come piss on your parade Sorry, rant over, right now I'm the same as you Laura and the snow has increased to such an extent that I can see it everywhere, on any surface, at any time of day. And it's extremely thick and in dim lighting it's very hard to see through. I'm hoping this is a rough patch, as I go through these from time to time - sometimes months at a time - and my VS will return to its normal shitty state. Hope you're coping a bit better now Hi there. Do you have any other symptoms apart from the snow? My after images are driving me mad now as well.
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Benny		#16	[url]	[-]
Registered User Posts: 4 02/08/12 5:40 PM	21stlvlrogue wrote: There have been some regular posters here, most notably Needhelp, who expressed a suicidal ideation and shortly after disappeared. We aren't sure what happened to them, but this certainly gives us a "reason to believe" that they could have done it. I hope Needhelp is ok, but I really think he did it. I once wrote a depressing poem about VS here and he responded saying he felt the same way and each night he put a gun barrel in his mouth. Or perhaps he stopped posting on a forum about it, and just got on with things? Yes, he could be dead right now, but he could also be leading an improved life! You say that talking about it helps and is not stressing, but it the same sentence you mention taking your own life. It sounds like you should be speaking to someone in real life and not on here. I am all for discussing it on a forum, but once you establish that there is no known treatment, what's the point in discussing it over and over on the internet? It's there you have to deal with it, and it's up to you whether you want to deal with it and talk about it all the time, or put up with it and try to enjoy the things which remain enjoyable in life. I have had VS since I was 17, I am now 24. It's been tough as hell, but I have got this far. At the moment, things are particularly bad and sure I have thought about ending everything, but then I think, well if I have come this far, I might as well keep going, who know's, it might even get a little bit better. I know that the best my VS has been, is when I had forgotten about it. The reason I forgot about it, because I was too busy enjoying the other things in life. My ears still work, so music remains an amazing thing. My OCD affects me more than my VS anyway, and I wonder if I could get past my OCD, then things might just get better. My life is a shambles at the moment, but that is what it is, a moment. Normally I would just wait to see what will happen, but I have to go out and make changes which in turn reduce my anxiety and reduce the other symptoms, including VS. I just always have to remember, yes there are billions of people in a better position than me, both health and life wise, but there are also billions of people worse off than me too. Life is still worth living, it's just a pain in the arse!
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Benny		#17	[url]	[-]
Registered User Posts: 4 02/08/12 5:47 PM	KayleighSpeirsx wrote: Why are people posting such crap? I mean seriously! It genuinely upsets me that people come on here and have a go at others for expressing how they are feeling. What else is the point in this forum then?! And if it keeps some of us sane, who are you to tell us to stop going on or accuse us of being over the top? Don't post if you're going to have a dig at someone who posted previously about how bad their life is because of this condition, maybe they're not making it all up to seem dramatic, maybe it is genuinely how they feel. I've had enough of this VS now, seriously has been getting worse for 4 years. 21stlvlrogue is right. No one, apart from people with VS whose condition is worsening and gradually deteriorating, will understand how that feels or what it does to your mental health and relationships with others. It ruins every aspect of normal life. Even leaving one environment to another, going for a shower from my dimly lit bedroom, for example, puts the fear of God into me because I know my vision is going to mess up and send me insane. People have different ways of coping; If it is getting it off their chest in forums like these then let them - let me - type away. Don't reply or comment if you've got a problem - start your own thread and let other like minded people comment on that! I promise I won't come piss on your parade Sorry, rant over, right now I'm the same as you Laura and the snow has increased to such an extent that I can see it everywhere, on any surface, at any time of day. And it's extremely thick and in dim lighting it's very hard to see through. I'm hoping this is a rough patch, as I go through these from time to time - sometimes months at a time - and my VS will return to its normal shitty state. Hope you're coping a bit better now I have dealt with VS, for around 8 years. It has gotten worse and it has gotten better. Believe me, I know exactly what it is like. Right now, my TV set hardly has a picture! I do understand!
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2fries		#18	[url]	[-]
Regular Visitor Posts: 665 02/08/12 5:50 PM	My comment was not meant to slight peoples' feelings. I know all about anxiety and depression. I was referring to 21st's comment. If you were Needhelp and you just happened to take a break for a while, would you want to read that crap when you got back? It just seems like a very harsh assumption to be anyone's first guess. Give the guy/gal the benefit of the doubt for Pete sake. {shrugs} maybe it's just me
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KayleighSpeirsx		#19	[url]	[-]
Regular Visitor Posts: 45 02/09/12 10:56 AM	2fries; I didn't mean about the suicide thing, that's a bit far I agree. I forgot about this VS for a year and got on with things until it got really bad like it is now, so I know people can go through bouts of that. I didn't come on here for a year and a half!! So hopefully NeedHelp is okay and getting on with things Benny your case of VS is the type of case I'm talking about then! I just don't understand how a normal life style is meant to be pursued when what we see isn't normal, the intensity of visual disturbance isn't normal, and our interpretation of vision is completely different to other peoples. Also the fact that we don't know when or how it could or will deteriorate shits me up when I think my vision's going 'odd'. I just don't understand Laura I have everything going; Floaters in both eyes (I see about 20 in moderate - bright daylight, or artificial light), halos around lights, star bursts around any light source, ghosting, trails, after images positive and negative after looking at ANYTHING, snow, blue entoptic phenomenon on any bright surface, tinnitus, brain fog, tiredness, anxiety, depression, stress, blah blah blah I've probably missed a few! - I have this annoying blind spot in my left eye as well which has been there for about 4 months, but it changes shape, colour and size so I'm assuming that'll get lost at some stage (I've had one like it previously). Laura, sometimes I do forget it's there, it's only for a moment then I come crashing back down to earth, but sometimes I do have normal moments You will learn to cope!
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user		#20	[url]	[-]
Regular Visitor Posts: 167 02/09/12 8:06 PM	Remove this ad 2fries wrote: My comment was not meant to slight peoples' feelings. I know all about anxiety and depression. I was referring to 21st's comment. If you were Needhelp and you just happened to take a break for a while, would you want to read that crap when you got back? It just seems like a very harsh assumption to be anyone's first guess. Give the guy/gal the benefit of the doubt for Pete sake. {shrugs} maybe it's just me It's not just you.
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the worse symptom and the one you would want to disapear the most.

the worse symptom and the one you would want to disapear the most.