You know that I've been working hard the last three years on setting up and running the Eye on Vision Foundation. I knew that one day, we would need funds to help find a treatment for VS. Well, it looks like the day is here!!!! I have some great news! I have been in contact with a U.S. based neuro-opthamologist and I am setting up a fellowship for a doctor in California to study VS. They will begin Phase I of the study, as soon as we can get the $15,000 together.
Here is where the problems lies. I can donate $4000 from the foundation, but we need to come up with the other $11,000 through donations. I'm not sure how familair anyone is with medical research, but it is extremely expensive. $11,000 is only the start, and I really want to be upfront about that with all of you. We are in a rare circumstance with wanting medical research on a very rare condition. We aren't going to have the financial support of a cause such as diabetes or cancer. We are a small group and are going to need to propel a lot of this research ourselves.
In the past when money has been brought up, the response is usually "I don't have any." I really understand that, and that is why I've come up with a plan to keep the donation cost as low as I can think of.
The doctors that I'm speaking with are willing to begin the project this month. I can't even tell you how excited I am about this.
Right now we have about 1100 registered members. That would mean that if each member donated $10 we would have our $11,000. The problem is that I kow all 1100 members don't visit the boards. Some might not even be legimate members, and people who just signed up out of curiousity. Cutting that number in half to 550, would mean each member could donate $20. This will only work if I can contact all of the members.
Ian, do we have an email system through the board that can be accessed for this?
Bottom line, if you can please try and donate $20 (more would be wonderful) this week we can get Phase I started right away. I am having a conference call with the doctors next week, and I will keep you updated. Unfortunately, we need to send them the $15,000 before the project begins, so the timing on this is crucial. Phase I will last from Oct 2008 - July 2009.
Donations can be made through credit card and PayPal and are tax deductible. Also, if you have a parent, sibling, relative or friend who is supportive of you, please ask them to make a donation. The $4000 that the foundation has raised so far has been about 90% from my own family and friends. People who are close to us are more than willing to help, and we could really use these funds right now.