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More experimenting - Caffeine, Magnesium

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jruddy	More experimenting - Caffeine, Magnesium		Lead	[-]
Regular Visitor Posts: 413 Jun 16 08 2:47 PM	Remove this ad I've been off caffeine more or less for a few years now. I was hoping that I might see an improvement in my VS with the consumption of Caffeine, but was expecting no change. To my surprise one large cup of strong regular tea made the snow, tinnitus and afterimages much worse. As the caffeine wore off the symptoms improved. It shouldn't be that big of a surprise to me though, as I have noticed a very slight improvement with alcohol, which I had previously assumed was just me not caring as much. I'm seriously contemplating trying "medicinal" marijuana next, it's supposed to help a lot of people suffering with epilepsy and my nausia when ever I yawn is getting old... I don't know if any of my meds would be a problem with it though. Celexa Topamax Famotadine Oh, and I tried Magnesium Oxide (125mg) for 2 weeks and only saw a slight increase in myoclonic jerks and tingling in the hands and feet and no other change, so I stopped. (I usually get enough Magnesium in my diet, and it is not a good one to have too much of.) Cheers, Jim
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darkprince86		#1	[url]	[-]
Regular Visitor Posts: 351 Jun 16 08 5:49 PM	Caffeine has no effect at all on the VS/after images etc for me, which i always found a little weird, but i'm not complaining, i like my cups of teas. Alchohol for me takes all symptoms away for at least an hour...but they come back with a vengence the next day with the worst hang over imaginable. People who smoke weed/marijuana get VS when high (ask any pothead, they all see VS for a few hours) but luckily for them it goes away once it's wore off, so i wouldnt recommend it, however i know there is 1 or 2 people on the HPPD forum that get rid of their visual symptoms this way, but i imagine its only a short term thing. You get the nausia when you yawn thing as well? how strange! something i've had ever since VS started. As for magnesium 125Mg is too small of a dose anyway, unsure why it caused more jerks for you? especially as it's a natural process your body needs =/, tingling in the hands/feet is not caused by magnesium, that's something else. Even if you have a good diet it's still possible to get nowhere near the right amount of magnesium in your body, it's quite often said you know when you have "too much" magnesium in your body as you'll be on the toilet all night.... I hope you find some sort of treatment soon Jim, just got to keep faith!
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mistermaxime		#2	[url]	[-]
Regular Visitor Posts: 232 Jun 16 08 11:33 PM	weird. caffeine has no effect on the visuals for me, but alcohol makes it worse than any other time and takes my headaches away.
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shannon3fh		#3	[url]	[-]
Regular Visitor Posts: 449 Jun 17 08 9:54 AM	alcohol takes my head ache away, i tried the magnesium for dizziness and it sort of helped.
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jruddy		#4	[url]	[-]
Regular Visitor Posts: 413 Jun 17 08 12:29 PM	I know I get enough magnesium - between ~380 and ~450 mg per day - whole grains, leafy greens etc.. I am certainly not deficient - though many, many people who don't eat right are. I started at 250mg but dropped to 125 after a couple of days because I wasn't feeling great - (on the can). Perhaps the 125mg dose upset the potassium/magnesium balance and I simply can't adjust? Who knows... Maybe it was coincidence. I can always try again. Regarding the tingling, I know I'm supposed to be keeping my potassium levels up because I'm on Topamax, though I haven't been as diligent as I have in the past. When the Potassium levels get low, the tingling gets bad, so I buy a bunch of bananas. I eat meat, poultry, fish, Potatoes, Broccoli, Carrots, Corn, Green Peas, etc... very regularly, and they're all high in K, so I figure I'm getting enough for a normal person, who knows what messing with suppliments does to my already medicated brain...? I wouldn't put it past a Topamax/Excess Mg or Topamax/Mg/K imbalance thing. Anyways, I feel better since I stopped the Mg suppliments, so at least for me, they're a no-go. Cod Liver Oil + B12 seemed to help level out my energy levels and also seemed to help with the left side weakness, excercise intolerance a little. With the return of sunny weather I've stopped taking the Cod Liver Oil though.
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shannon3fh		#5	[url]	[-]
Regular Visitor Posts: 449 Jun 18 08 9:41 AM	i have been getting right side weakness for the past month. i am going to talk w my dr about it this week. how bad is yours? mines not that noticible but i can def feel it. usually comes after a bad week of head aches.
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jruddy		#6	[url]	[-]
Regular Visitor Posts: 413 Jun 18 08 1:34 PM	Mine varies quite a bit, it's been happening since December. Sometimes I don't notice it anymore, though I've made accomodations in how I use my left arm. I'm quite bad right now, but the weather has been unsettled and I've also been working hard on tearing apart my above ground pool and pool deck (no $ to fix or run the pool this year plus two young kids so we're ripping it out). I find that especially when it's bad and even when it isn't I do have excercise intolerance on my left side. The one Neurologist won't diagnose it, another indicates possible Hemiplegic Migraine in his report. I'm waiting for mtDNA tests to come back to rule out mtDNA problems. The Neuro that won't diagnose won't give me an alternative diagnosis beyond that he thinks it might be related to depression or anxiety, though the shrink thinks that is a load of bull - it shouldn't manifest in one side only. Anyways, good luck Shannon! Don't worry, there's a few of us with this crazy weakness thing going on! Jim
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juliedeeinthesnow		#7	[url]	[-]
Regular Visitor Posts: 397 Jun 20 08 10:09 AM	jruddy, you're thinking of trying cannabis medicinally, but isn't cannabis (THC) basically related to hallucinogens in properties? Since hallucinogens have been plugged for creating some of the vs issue, is this risky?
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HopeTheyFindaCure		#8	[url]	[-]
Regular Visitor Posts: 355 Jun 20 08 11:40 AM	And cannabis makes Dp much, much worse...
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jruddy		#9	[url]	[-]
Regular Visitor Posts: 413 Jun 20 08 2:25 PM	It's not a hallucinogen, per se, it's more of a cross between a bunch of different catagories - Stimulant, Depressant, Dissociative Hallucinogen and Antipsychotic. The dissociative hallucinogen is what leads to the DP as mentioned above. But then, Nitrous Oxide is a Dissociative Hallucinogen too.. anyone been to the dentist lately? MJ works as an anti-seizure and anti nausia drug, it is prescribed or used to reduce or eliminate seizures in epileptic patients as well as nausia in AIDS and cancer patients. It also has mild pain relieving properties and is used by migraine, MS and Parkinson's sufferers who see a reduction in their symptoms from it. I don't see it as much of a risk, but I think the attitude towards personal Cannabis use in Canada is quite a bit more relaxed then in the States. http://www.thecompassionclub.org/ Now that I am going to be trying keppra, my experiment into "reefer madness" is on hold though... lol
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mistermaxime		#10	[url]	[-]
Regular Visitor Posts: 232 Jun 20 08 3:28 PM	Remove this ad Laughing gas definitely makes you feel like you are part of a dream.
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mistermaxime		#11	[url]	[-]
Regular Visitor Posts: 232 Jun 20 08 5:15 PM	It was different for me. I kept questioning whether things that happened did actually happen or not. It gave me that dream-haze portrayed in movies. It was really weird cause the parts of the surgery that would be the most painful, were the most enjoyable with laughing gas. Absolutely no pain, but I knew i should feel it. Possibly a good example of its dissociative properties and why it worsens DR/DP.
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ohCRICKETS		#12	[url]	[-]
Registered User Posts: 383 Jun 22 08 5:59 AM	Sometimes I feel like I couldn't make it through the day without caffeine. I've never really used any concentrated magnesium. Caffeine and nicotine make me feel slighter more in "sync" and able to concentrate, but that's not much of a surprise considering how many schizophrenics are chronic smokers and coffee drinkers. Eins - Hier kommt die Sonne Zwei - Hier kommt die Sonne Drei - Sie ist der hellste Stern von allen Vier - Und wird nie vom Himmel fallen Fünf - Hier kommt die Sonne Sechs - Hier kommt die Sonne Sieben - Sie ist der hellste Stern von allen Acht, Neun - Hier kommt die Sonne
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juliedeeinthesnow		#13	[url]	[-]
Regular Visitor Posts: 397 Jun 22 08 1:36 PM	I actually have a suspicion that exposure to nitrous oxide during anesthesia (if it was, in fact, in the mix) may have helped me when I was very sick--I was neurologically in bad shape and after anesthesia something "reset"(that's the only word I have for it)--I was off of all meds in three weeks and I don't think it was just the magic of getting my dysfunctional gall bladder out-- I don't know if nitrous oxide was in any way connected to the vs--it certainly didn't trigger it and it didn't resolve it, but I sure needed that anesthesia and/or surgery.
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SopuliSusie		#14	[url]	[-]
Posts: 1522 Jun 22 08 8:09 PM Administrator	A little bit of caffeine seems to help me- too much though is bad! My doctors put me on some really concentrated magnesium. High doses are supposed to help prevent migraine activity- at also helps with joint pain and muscle stuff. I have 3 doctors wanting me on lots o' extra magnesium for a couple of different reasons. Speaking of odd things when we first developed this stuff, my blood magnesium was so low, they put me on a magnesium IV. That... the spinal headache from the lumbar puncture, and any of the pain meds and such they put me on... I guess its hard to know. I really wonder what made the persistent (which I'd had lots of times before that then resolved after weeks or months) into apparently permanent (2.3 years and counting). Need to cheer yourself up? Watch the Kitty Cat Dance!
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PerplexedPigeon		#15	[url]	[-]
Regular Visitor Posts: 55 Jul 1 08 5:46 PM	Sorry if this thread is too far back for a resurrection. Caffeine confuses me. People always talk about feeling more energetic after drinking coffee, or pop or some carbonated beverage. I never feel any different. Pop just tastes good. Some coffees I enjoy. For about 2 months I drank coffee everyday because I had to wake up extra early. The days I skipped the coffee I had no changes. I can't tell the difference in anything at all. Which is why I've concluded most of its just psychological. I drink a Dr. Pepper a day. Not much coffee anymore. Caffeine is far down on the Dr. Pepper can, so I doubt it has much anyways.
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ohCRICKETS		#16	[url]	[-]
Registered User Posts: 383 Jul 2 08 10:25 AM	PerplexedPigeon wrote: Sorry if this thread is too far back for a resurrection. Caffeine confuses me. People always talk about feeling more energetic after drinking coffee, or pop or some carbonated beverage. I never feel any different. Pop just tastes good. Some coffees I enjoy. For about 2 months I drank coffee everyday because I had to wake up extra early. The days I skipped the coffee I had no changes. I can't tell the difference in anything at all. Which is why I've concluded most of its just psychological. I drink a Dr. Pepper a day. Not much coffee anymore. Caffeine is far down on the Dr. Pepper can, so I doubt it has much anyways. Caffeine is far from psychological. Caffeine stimulates your heart rate as well as your dopamine levels, and gives you a feeling of alertness and reward (kinda like cocaine, but virtually not as harmful or addictive). As a truck driver, as he probably relies on it to stay awake during long drives. Migraine sufferers are usually prescribed a combination of caffeine and NSAIDs, to regulate the swelling of blood vessels in the brain. Personally, I just couldn't get through the day sometimes without caffeine to keep me focused on my job instead of my headaches and vision. Eins - Hier kommt die Sonne Zwei - Hier kommt die Sonne Drei - Sie ist der hellste Stern von allen Vier - Und wird nie vom Himmel fallen Fünf - Hier kommt die Sonne Sechs - Hier kommt die Sonne Sieben - Sie ist der hellste Stern von allen Acht, Neun - Hier kommt die Sonne
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PerplexedPigeon		#17	[url]	[-]
Regular Visitor Posts: 55 Jul 2 08 10:41 AM	That makes a lot of sense actually. I always expect I'm supposed to be literally trying to jump off the walls because of caffeine. At least thats how my peers act when they drink coffee. Taking your mind off things because of the boost you get, that may have helped me when I had to wake up at 5:00 AM for Drivers Ed. I could stop thinking about being tired and move on.
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shannon3fh		#18	[url]	[-]
Regular Visitor Posts: 449 Jul 2 08 2:06 PM	ook a vitamin and mineral supplement earlier this year and the feeling of going to faint ---havevs i had the same experience i wonder what it could be.
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juliedeeinthesnow		#19	[url]	[-]
Regular Visitor Posts: 397 Jul 4 08 12:35 PM	That's interesting. I've long suspected some Eustachean (?sp) tube difficulty for myself. You get sounds when your eye moves? That sounds unnerving.
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juliedeeinthesnow		#20	[url]	[-]
Regular Visitor Posts: 397 Jul 7 08 8:07 PM	Remove this ad Wow, like drug sensory experience without the drugs! Does the vibration feel like nerves firing or muscles twitching, or is it a different feeling? Sounds like it would make it really hard to go to sleep.
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More experimenting - Caffeine, Magnesium

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