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my 7th sense

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Sarah A	my 7th sense		Lead	[-]
Regular Visitor Posts: 229 06/05/08 3:04 PM	Remove this ad Well, it's been almost a month since this ringing started in my ears. It seems I've added a 7th sense (the 6th, of course, being VS). If I get hyper touch, smell and taste I will go insane. A person can only have so much input. Maybe this is sort of how autistic people feel. I've read they lack the ability to filter stimuli.
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HopeTheyFindaCure		#1	[url]	[-]
Regular Visitor Posts: 355 06/05/08 4:20 PM	I don´t think so... Tinnitus it´s a very frequent symptom!Only in US there are about 50 million of people suffering from it...My father ear it, my uncle ear it, some of my friends ear it (specially musicians), and so do I! I´m absolutely sure that in spite of many people with VS also have Tinnitus there ain´t necesserally a conection... Mine was undoubtly due to noise induced trauma...I wonder how I resisted so much without it because during years an years I was in a daily basis in loud envirements: rehersals, gigs, clubs, cd players, etc. Hopefully there´s a lot investigation around Tinnitus and some very good treatments available, recentely I read that a Doctor (german I think), found a new way of get his pacients rid of it with a brain surgery ( I think someone post a topic about that few time ago). I´m on my 10th month with the ringing on my ears/head... When I look back and remember the way I felt about it when I was on my first month as you are now I really understand how you´re feeling, but if you try to ignore it (I know, I know, it´s not easey), with time you will not notice the noise no more. Sometimes If I´m in absolut silence I ear it but dosent botter me no more. Believe me you´ll get over it. Have strenght and don´t fell anxious about it! Try TRT it´s the best treatment available in my opinion, works with me and as far as I know with 80% of people
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SopuliSusie		#2	[url]	[-]
Posts: 1496 06/05/08 4:59 PM Administrator	I am along the same lines of thinking as Sarah A. I've actually been thinking about this a lot lately. I think with autism the idea is definitely that patients can't filter the important or salient stimuli from the noise. We VS types are also having extra noise, but ours in coming from inside the brain. When I'm being completely overwhelmed by stimuli, I know I can start to glimpse why autistic kids go into repetitive motions and such. Yes, lots of people have VS and lots of people have tinnitus, but very few people develop this type of fuzziness in multiple sensory modes. My hands and feet feel fuzzy all the time, and I go through periods of hypersensitive smell. Dealing with all that extra stuff completely sucks. It wears you down. I think one reason why so many of us have fatigue is that is takes extra energy to process all the extra input. Visual processing, normally, is metabolically costly. We are having to process overly complicated environments, and that requires much more energy. I think this is one reason why people see a lessening of symptoms with extended rest. It might very well be that the symptoms haven't lessened, but the ability to process that ickiness has bounced back. I am honestly thinking about working on a model of the metabolic costs of all this extra sensory processing. Need to cheer yourself up? Watch the Kitty Cat Dance!
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ksomething		#3	[url]	[-]
Registered User Posts: 5010 06/05/08 6:02 PM	http://www.migraine-aura.org/content/e27891/e27265/e42285/e42290/e55289/e55400/index_en.html Asperger's disorder and PMA are clinically distinct disorders (see above). However, there may be some similarities between the sensory processing disorder of some cases of PMA and autism spectrum disorder, as Sarah A and SopuliSusie suggested.
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ksomething		#4	[url]	[-]
Registered User Posts: 5010 06/05/08 6:16 PM	Sarah, can you describe the onset of the persistent tinnitus? Did it begin with headache? Which ear(s) is/are affected? Could you make an illustration/cartoon of the tinnitus, there are alomostnone pictorial representations of the tinnitus.
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starrant		#5	[url]	[-]
Regular Visitor Posts: 1872 06/06/08 10:48 AM	SopuliSusie wrote: I am along the same lines of thinking as Sarah A. I've actually been thinking about this a lot lately. I think with autism the idea is definitely that patients can't filter the important or salient stimuli from the noise. We VS types are also having extra noise, but ours in coming from inside the brain. When I'm being completely overwhelmed by stimuli, I know I can start to glimpse why autistic kids go into repetitive motions and such. Yes, lots of people have VS and lots of people have tinnitus, but very few people develop this type of fuzziness in multiple sensory modes. My hands and feet feel fuzzy all the time, and I go through periods of hypersensitive smell. Dealing with all that extra stuff completely sucks. It wears you down. I think one reason why so many of us have fatigue is that is takes extra energy to process all the extra input. Visual processing, normally, is metabolically costly. We are having to process overly complicated environments, and that requires much more energy. I think this is one reason why people see a lessening of symptoms with extended rest. It might very well be that the symptoms haven't lessened, but the ability to process that ickiness has bounced back. I am honestly thinking about working on a model of the metabolic costs of all this extra sensory processing. Ksomething may be able to back me up on this, but while the brain, pound for pound is only just behind I think the heart in terms of metabolic O2 demand concentration, going for a run I am sure is more metabolically costly than processing visual crap. Of course, almost none of us run for an entire day either... I think the brain is like less than 5% of the body's weight, but uses up like 20% of the O2 and blood. I do believe the heart is actually the most metabolically demanding tissue as it basically pumps a crap load of blood to the rest of the body 24/7. It needs all that O2 and blood to run continuosly without going anerobic and tiring like all our other muscles do. http://www.youtube.com/watch?v=iqTF7K9zJLw&mode=related&search= http://www.youtube.com/watch?v=4Tu7q2YTuR8 http://www.youtube.com/watch?v=95mwIi8lVHQ&mode=related&search= http://www.youtube.com/watch?v=UJHEoq7dqy8&mode=related&search Some movies on my avatar if you are curious.
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starrant		#6	[url]	[-]
Regular Visitor Posts: 1872 06/06/08 10:54 AM	ksomething wrote: Could you make an illustration/cartoon of the tinnitus, there are alomostnone pictorial representations of the tinnitus. Why do I find this funny? Here is my illustration: )))))))))))))))))))))))))))))))))))) .\/. (((((((((((((((((((((((((((((((((((((((((((((( ............................................................................................................................() MAKE THIS CRAP GO AWAY!!!!!!!!!!!!!!!!!!!!! I had to use periods because this board I guess removes extra spaces. http://www.youtube.com/watch?v=iqTF7K9zJLw&mode=related&search= http://www.youtube.com/watch?v=4Tu7q2YTuR8 http://www.youtube.com/watch?v=95mwIi8lVHQ&mode=related&search= http://www.youtube.com/watch?v=UJHEoq7dqy8&mode=related&search Some movies on my avatar if you are curious. Last Edited By: starrant 06/06/08 10:57 AM. Edited 1 time.
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janey		#7	[url]	[-]
Regular Visitor Posts: 1008 06/06/08 10:57 AM	Remove this ad I wonder what my daughter experiences.....she is suspected along the autistic spectrum but has no diagnosis yet. I can tell you, she is extremely sensitive to noise and touch. She always has been....but since it is so difficult to communicate with her I do not know how she sees the world ...what she sees. With further regard to extra sensory stimulation....I have awful extra sensory taste ....I have reported the metallic taste before, I have had it all week this week and I HATE IT. It really drives me to distraction. So...I have the VS....the tinnitus and the extra sensory tasting I have nasal polyps so have no sense of smell. Touch seems ok at the moment............but I did have some problems with pain a while ago. such a mystery....WHY WHY WHY??????????
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starrant	the horrors of T	#8	[url]	[-]
Regular Visitor Posts: 1872 06/06/08 11:15 AM	Here is another image depicting the horrors of T. http://www.youtube.com/watch?v=iqTF7K9zJLw&mode=related&search= http://www.youtube.com/watch?v=4Tu7q2YTuR8 http://www.youtube.com/watch?v=95mwIi8lVHQ&mode=related&search= http://www.youtube.com/watch?v=UJHEoq7dqy8&mode=related&search Some movies on my avatar if you are curious.
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juliedeeinthesnow		#9	[url]	[-]
Regular Visitor Posts: 397 06/06/08 12:41 PM	I think the question that Sarah A and Susie is raising is really interesting. When I was most sick I had really severe symptoms of overstimulation--every sound, color, movement, contrast--every sense (especially visual) was terribly sensitive. It was by far the worst experiences in my life, and I could do nothing to stop it. It was like being a guitar string very tightly strung and then struck--everything felt that way--all senses (but smell) with vision the worst. I don't ever want to go there again. I do believe this state led to the vs or the two were caused by the same thing.
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SopuliSusie		#10	[url]	[-]
Posts: 1496 06/06/08 2:52 PM Administrator	I had the same overwhelming yuck when I first got sick also. I was literally under the covers in a hospital bed for days. That, plus the enormous pain in my head made up the very first time in life that the concept of suicide ever made logical sense to me. Horrific. When I got home, I had to take all the pictures off the wall and I would just have to sit without moving and just look at something blank. I feel sick just thinking about that. I've noticed that it really doesn't take much these days to knock me over the edge with overstimulation... just the change in volume on the TV when it switches to a loud commercial just does me in sometimes. I've mentioned it in other posts, but I redecorated my apartment in soothing colors-- I used to love strong colors and patterns. I still do, I just can't live with them. I have a hard time with moving objects- so stick me in a busy mall with people walking everywhere, and babies crying, and horrible mall music, and so many smells at once... I can't handle that. I start to get irrational and grouchy. Your guitar string description really fits well. Need to cheer yourself up? Watch the Kitty Cat Dance!
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Sarah A		#11	[url]	[-]
Regular Visitor Posts: 229 06/06/08 5:45 PM	KSomething: The ringing sounds like that high pitched, air filled noise a VCR or tape player makes when the tape is spinning but not playing sound, like at the end or beginning of the tape. It started one night out of nowhere in both ears about 3 weeks ago and never went away. A few weeks before the ringing started I began experiencing ear pressure in both ears. This came and went and continues to come and go. The ringing, however, is consistent and does not change. I'll try to make a cartoon soon. I just moved across the country this week so I'm getting settled.
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darkprince86		#12	[url]	[-]
Regular Visitor Posts: 351 06/06/08 5:51 PM	@Sarah A, the ringing in my ears started less than a week ago, it came on randomly as well...was just walking in the lounge/living room and had a very high pitched sound in my right ear that didnt go away for a good 15-20 minutes...made me feel a little panicky. It was completely gone in the morning however by early evening i had quiet beeps in my right ear..over the past week it has become permanent, its a weird sound...drives me crazy...i find myself having music on all the time to try and drown the sound out! So your not alone here
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juliedeeinthesnow		#13	[url]	[-]
Regular Visitor Posts: 397 06/07/08 11:14 AM	Remove this ad SopuliSusie wrote: I had the same overwhelming yuck when I first got sick also. I was literally under the covers in a hospital bed for days. That, plus the enormous pain in my head made up the very first time in life that the concept of suicide ever made logical sense to me. Horrific. When I got home, I had to take all the pictures off the wall and I would just have to sit without moving and just look at something blank. I feel sick just thinking about that. I've noticed that it really doesn't take much these days to knock me over the edge with overstimulation... just the change in volume on the TV when it switches to a loud commercial just does me in sometimes. I've mentioned it in other posts, but I redecorated my apartment in soothing colors-- I used to love strong colors and patterns. I still do, I just can't live with them. I have a hard time with moving objects- so stick me in a busy mall with people walking everywhere, and babies crying, and horrible mall music, and so many smells at once... I can't handle that. I start to get irrational and grouchy. Your guitar string description really fits well. I can relate to all of this. I seem to get most of the pulling down into the hypersensitivity when I've had a vaccination or I've been exposed to something contagious in the clinic that's going around or there's some kind of hormonal or physical stressor, and I can't always identify it right off the bat. I just know the threshold, the feeling of it and I know that these factors are at work and that it will likely become evident to me later where the cause lies. I guess it's usually immunologic. I feel the allergy shots have actually helped over time. I felt getting pulled down into it about 2-3 days ago and I was puzzled, and then I felt the next day like I was coming down with something (I often feel malaise but don't get a full blown case) then I find out some highly contagious virus is going around, ya, ya, ya. But this stuff I'm describing is only 1/5 the strength of what I experienced when I was most sick. I can sing again now without worsening the symptoms. I can watch computer animation now and computer generated movement on TV commercials (that was a big problem) as well as regular animation, but I still limit visual patterns when I can. Susie, how's the catalog of visual hell coming? I have a shirt that might make a good addition--at least when I'm wearing it I don't have to look at it....
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