Use this thread to share experiences about doctors you've encountered. The good, the bad, anything that might help people find a doctor that's willing
to help.
Physician discussion and reports
| Author | Comment | |||
|---|---|---|---|---|
 IanKC |
Physician discussion and reports |
Lead | ||
|
Posts: 2231 10/03/07 2:55 PM Administrator
|
http://www.visualsnow.com | Lots of information on Visual
Snow/PMA
Last Edited By: IanKC 11/17/07 1:54 AM.
Edited 2 times.
|
|||
|
|
||||
|
darkthriller |
#1 | |||
|
Registered User
Posts: 10 10/05/07 7:29 PM |
If you're in the Southern Ca. area and in need of a physician I would recommend Dr. Quiros at USC. He's an neuro-ophthalmologist who finally said what
my problem was. He didn't classify it as "visual snow" but did discuss persistent aura. He tried Topamax which had to be stopped due to side
effects. Tegretol was a failure (rash) as well. His discussion about treating this disorder was direct and clear. His view is this disorder is caused by
faulty sensory gating of the thalamus.
Bottom line: very good doctor and very easy to talk to. Hang in there everyone. Try to make this weekend a good one! |
|||
|
|
||||
|
ksomething |
#2 | |||
|
Registered User
Posts: 5010 11/10/07 7:47 AM |
http://www.migraine-aura.org/content/e27891/e27265/e42285/e54218/e56932/index_en.html
I have included a section "How can I find a doctor knowledgeable and experienced in taking care of people with persistent aura?" in the FAQ section of the www.migraine-aura.org website. I intend to collect the names and complete address (and, if available, URLs of info in internet) in a list that will not be published on the website, but that will be sent, upon request via email, to persons asking for that information. If you are satisfied with your doctor who treats your PMA/vs, please send me an email via kpodoll@ukaachen.de so that I can include that doctor's name in the list, which may help others. |
|||
|
|
||||
|
TonyP |
#3 | |||
|
Registered User
Posts: 17 11/14/07 4:51 AM |
I saw Dr. Raskin again the other day at UCSF. Like most, he's not that worried from a medical standpoint. He's sympathetic to my/our dilemma.
Regardless, he's seen about 30 people who fit our symptom profile over the years -- and nothing has ever really helped. The two drugs that are indicted for
this condition are depakote and lamictal. Numerous other posters on this board have tried these drugs without benefit.
There are many drugs being developed -- there's no reason not to be optimistic. Best, Tony |
|||
|
|
||||
|
winklemouse |
#4 | |||
|
Regular Visitor
Posts: 215 11/27/07 10:07 PM |
Link to my palinopsia-literate doctors page, including doctors that I've been to that are helpful, and positive responses I got from my mass mailing of
every doctor who's written a paper on the subject....http://www.palinopsia.com/palinopsiafriendlydoctors
|
|||
|
|
||||
