Medications and other things that have helped (merged) in General Discussion Forum

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Medications and other things that have helped (merged)

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BlackKitty	Re: Record of effective and ineffective medications	#61	[url]	[-]
Registered User Posts: 49 12/12/06 6:33 PM	Remove this ad 1. Name of medication - Paxil 2. Maximum dosage taken - 40mg once daily (morning) 3. Duration of treatment - 7 months 4. No effect or positive effect (if positive effect, please describe) No effect 5. If positive effects, how long did it take to get the positive effect? 6. Unwanted side effects Weight gain
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Nvs91	Re: My medication history	#62	[url]	[-]
Registered User Posts: 5 12/18/06 9:19 PM	Anna Did your neurologist give any reasons for why he prescribed Prednizone? Considering that P. is a pretty hefty drug I would assume he gave some reason for why he prescribed it? Also, I am a little unsure as to if your v.s. is practically gone now?
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viper123456	More information on Clomid	#63	[url]	[-]
Registered User Posts: 871 12/22/06 9:26 PM	Clomid may act on the same system as VS. Unfortunately, it looks like it might cause permanent damage as well: 1: Arch Ophthalmol. 1995 Apr;113(4):482-4. Links Visual disturbance secondary to clomiphene citrate.Purvin VA. Midwest Eye Institute, Methodist Hospital of Indiana, Indianapolis, USA. OBJECTIVE: To identify a distinctive constellation of persistent visual abnormalities secondary to treatment with clomiphene citrate. DESIGN: Description of the clinical findings in three patients with visual disturbance secondary to clomiphene treatment. SETTING: A neuro-ophthalmology referral center. PATIENTS: Three women aged 32 to 36 years treated for infertility with clomiphene for 4 to 15 months. RESULTS: All three patients experienced prolonged afterimages (palinopsia), shimmering of the peripheral field, and photophobia while undergoing treatment with clomiphene. The results of the neuro-ophthalmologic examination and electrophysiologic studies were normal in all three patients. Unlike previously reported cases, visual symptoms did not resolve on cessation of treatment. Patients remain symptomatic from 2 to 7 years after discontinuing treatment with the medication. CONCLUSIONS: Treatment with clomiphene can cause prolonged visual disturbance. Patients who develop such symptoms should be advised that continued administration may cause irreversible changes. Women with characteristic visual symptoms should be questioned about past use of clomiphene.
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viper123456	Re: My medication history	#64	[url]	[-]
Registered User Posts: 871 12/24/06 2:48 PM	Baclofen is a migraine preventative (see list in other posting) and has andecdotal helped some to a very small extent- this information is still unconfirmed however. additional information: www.ncbi.nlm.nih.gov/entr...t=Abstract
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Sam Rozell	Re: Sticky: Things that have helped	#65	[url]	[-]
Newbie Posts: 10 01/01/07 10:40 PM	Hey everybody, I've had vs consistently for two years along with constant headache. I was paying very close attention to what might affect it long before I heared the term vs. It seemed to me to have a strong connection to my sleep patterns. To much sleep Is just as bad as not enough. One night I went to sleep and woke up about 7 hrs. 20 min later. I sat up, the sun was shining in my room and everything for the first time in about a year n' a half was clear as a bell. It was so great! And then I was stupid and went back to sleep for what seemed to be about 20 min., when I woke up everything was back to static and a dull headache. The other thing I want to mention is that I woke up that morning just as the sun was coming up. I've also meet two cab drivers who drive at night that decribe the same symtom's as vs. I know it's nothing new, but sleep schedule really seems to affect it. And also I think that being awake during the day instead of being a night owl is better. Man I sure miss having normal vision. I guess things could be worse. This thing is difficult on so many levels. Wish the best for everyone. Sincerley, Sam Rozell
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mblankenship	Re: Things that have helped	#66	[url]	[-]
Posts: 50 01/04/07 12:33 PM	My doctor just put me on Lamictal. I will let everyone know if it helps.
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donjenkins	Re: More information on Clomid	#67	[url]	[-]
Regular Visitor Posts: 253 01/08/07 4:49 PM	Name of medication - Clonazepam / klonopin(us) 2. Maximum dosage taken - 0.5mg x 5 daily 3. Duration of treatment - 2.5 years 4. No effect or positive effect (if positive effect, please describe) Positive - anxiety reduced dramatically. Visuals became less intense, with time i began to almost forget about them as they were not debilitating anymore. fuzzy, cloudy dizzyness dissapeared completely and nausea stopped. vertigo completely disapeared. 5. If positive effects, how long did it take to get the positive effect? approx a week for anxiety to reduce and about 5 -6 months for other benefits. 6. Unwanted side effects- only very tired at beginning....now fine. Although withdrawn to 0.5mg x 3 daily....just to see ?????
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starrant	Re: My medication history	#68	[url]	[-]
Regular Visitor Posts: 1872 01/08/07 10:53 PM	1. Name of medication (generic or chemical name) Topamax 2. Maximum dosage taken I was on 100mg a night for one week (I started at 25mg a night for one week, then 50mg a night for one week, and then 75mg a night for one week, and then ended up at 100mg a night for just over one week. 3. Duration of treatment 9 days at 100mg a night: was on Topamax for a month as described above. 4. No effect or positive effect (if positive effect, please describe) It did take away the frequent headaches I was getting at the time. There was no effect on my vision at all. After being off the Topamax since 22 December 2006, I have only had one headache (Christmas Day) that was fairly bad. I have been seeing a chiropractor 3 times a week since November 3, 2006, so perhaps getting my neck in better alighnment has reduced the headaches?? 5. If positive effects, how long did it take to get the positive effect? The headaches were taken out immediately 5. Unwanted side effects Absolutely no effect on my vision, in fact, I thought my vision might have been the slightest bit worse. My distance vision seemed a bit blury also. Since stopping it, my vision is sharp acuity wise (not blurry). Also, I was more tired in the mornings and during the afternoon. All in all I could tolerate the side effects of 100mg a night if only it helped my vision any.
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Jeff Fisherman	Re: Sticky: Things that have helped	#69	[url]	[-]
Posts: 12 01/18/07 6:17 PM	I'm just going to reply again because I haven't been to this board in probably close to a year. The first time I discovered that I may be seeing VS, my anxiety went through the roof, I was having panic attacks, fear of something extremely wrong etc. But over time I realized that there were many times when I didn't even notice it. I'm sure it was there to some degree, but my point is, if you learn to relax it can become normal vision. Normal vision meaning that it is gone. Maybe it was always normal and it's just something people don't typically notice. I swear I remember seeing at times as a kid, and I never took any kind of drugs of any kind then. I was able to forget about that for many many years. For me, it's only something I notice in dark areas and only when I conciously think about it. Like noticing your nose is there, see? you are instantly concious of it.. but don't worry, you'll forget that soon. That's how life works. Trust me. It can be as easy as just keeping yourself occupied and content. So to me, it's very psychological. I'm not discouraging people to look for a cure, because I know I don't have it as bad as other's may and certainly it deserves research. At the same rate, for those who might be noticing it for the first time, just remember to relax.. anxiety will just make it worse and it doesn't have to be as intense as you think. If you are like me.. You were probably worrying way too much. Now go out side and enjoy life
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MRuckles	Verapamil...	#70	[url]	[-]
Posts: 7 01/25/07 4:22 PM	Remove this ad Hey all - Am currently on 240 controlled release of Verapamil. Anyone else? I don't notice any side effects. As for benefits, I was very optimistic for about 3 days, and I'm still sure that my vision is better somehow. (Seems like less glare and halos at night. My vision seems sharpest for about 2 hours after I take it in the morning. For being controlled release, I'm not seeing the effect evenly throughout the day!) I'm wondering if things will even out and continue to get better, or if this is it. I definitely can't really go UP in dosage! God bless, Mark
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cjhoward	Re: My medication history	#71	[url]	[-]
Posts: 12 02/06/07 8:52 PM	Here's a list of stuff I've taken(quite extensive) -Klonopin up to 2mg, No Effect -Xanax up to .5 mg, No Effect -Wellbutrin 450mg, Helps a little bit -Buspar 10mg, No effect on vision -Effexor 150mg, Made my eyes feel more like they were aligned -Zoloft(dont remember dosage), Same as Effexor -Lexapro 10mg, didn't take it long enough to see effect -Adderall 10-30mg, No effect -Trazedone(dont remember dosage), No effect Side effects that were prominent: -Klonopin, Made me feel depressed and might have actually made the problem worse -Trazedone, this thing will knock you out cold -Xanax, none -wellbutrin, headache for the first month I was on it -Buspar, terrible nausea for 3 weeks but subsided -Effexor, tons of difficulty peeing -Zoloft, none -Lexapro, zapped my energy -Adderall, made me have tons of energy In conclusion, Wellbutrin is the only thing that seems to have had a reasonable impact on my visual symptoms. Feel free to message me if you have any questions about the above.
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starrant	Re: Sticky: Things that have helped	#72	[url]	[-]
Regular Visitor Posts: 1872 02/07/07 4:31 PM	cjhoward said that Wellbutrin 300mg - Helped a little with every symptom he had including the vision distortions.
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Neurogurl	Re: Things that have helped	#73	[url]	[-]
Regular Visitor Posts: 297 02/22/07 2:36 PM	Lamictal made things worse for me. Ativan helps the anxiety but not the visuals.
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ihatesymptoms	Re: Verapamil...	#74	[url]	[-]
Regular Visitor Posts: 286 03/05/07 1:28 PM	Havent tried any meds as of yet. but have been taking various supplements for a while now vitamin B12 500ug. three times a day to start with, now once a day - no effect cayenne tincture - 2ml 3 times a day - no effect brewyers yeast - no effect various other things all the while my visuals have been getting worse each day im starting on magnesium and ginkgo bibola today. i realise it prob wont do much, but taking tablets has a placebo effect and anyway its probably making the rest of me more healthy. asking about an anti anxiety drug this week. gonna get a referral from my councellor i recon
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SwedeP	Re: Record of effective and ineffective medications	#75	[url]	[-]
Regular Visitor Posts: 164 03/11/07 12:00 AM	Hi CJHoward: I'm curious about your experience with Welbutrin. How long did you stay on it? What was the nature of the improvments that you mentioned? Do you have persistent after images as well? And if so, did the Welbutrin help? And finally, if the Welbrutin helped, why did you not continue with it? Thanks for your informative post. Best, SwedeP
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jmpnbean	irlen institute	#76	[url]	[-]
Posts: 3 03/11/07 8:09 PM	I have symptoms which are consistent with what other people have described. I have been diagnosed with Lyme, and have been referred to the Irlen Institute as a possible means of mitigating some of the visual disturbances. They make custom coatings to be put on a pair of glasses. I have been told that several people with a variety of visual disturbances have been helped using their techniques. Each coating is custom-made for each person. I'm going to be fitted for a pair of glasses and the associated coating within the next several weeks, and I will report on the findings. Anyway, here is their website: www.irlen.com/
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jmpnbean	Re: Things that have helped	#77	[url]	[-]
Posts: 3 03/12/07 11:57 AM	I recommend that people look at Dr. Shoemaker's website (www.chronicneurotoxins.com/). He has an online vision test that can be taken to test for the presence of neurotoxins in the brain. These neurotoxins can cause a variety of visual disturbances. His work has showed that taking Questran (cholestyramine) for several weeks can absorb the presence of neurotoxins in the body and lessen the symptoms. Be careful, though, as Questran can be difficult to take and will absorb just about any medication you are currently taking. It is a cholesterol-lowering drug that effectively "soaks" up just about everything in your intestines like a sponge. It isn't absorbed, so it doesn't cross-react with other meds. It can drammatically reduce the ability of your body to absorb nutrients, though. Meds/vitamins should be taken 2hrs away from the questran (minimum). The medication can cause abdominal cramping, bloating and constipation. It is barely palatable, but if it works for you, it will likely be worth it. Using four weeks at 3, 1-cup solutions of the mixture per day is required for the desired effect. Many people feel worse before they feel better. Dr. Marinkovich also recommends the use of agar (seaweed extract) in a tea to be drunk twice a day. 1/4 teaspoon of agar in hot water. He claims that this has a similar effect. I personally haven't noticed any change yet using the agar, but I've only been using it for several days now. If people do find that either of these treatments help, I would suggest contacting either Dr. Shoemaker or Dr. Marinkovich as this would reliably indicate the presence of neurotoxins in the brain. If you will refer to Dr Shoemaker's website, you will see that many things can cause the presence of neurotoxins. These include molds, lyme, yeast etc. The last thing that I would suggest is to be tested for heavy-metal toxicity. There are a variety of labs that can test for this reliably. The best involves taking several pills of DMSA and then performing a urine test. The test can check for mercury, lead etc. You will need a prescription from your doctor. I would recommend Genova Diagnostics: www.gdx.net/home/assessme...index.html I hope this is helpful to people. Dr. Shoemaker's website can be found here: www.chronicneurotoxins.com/ Dr. Marinkovich is an expert in molds and allergies: www.immunetech.com/aboutus/index.php www.healthgrades.com/dire...B14395.cfm
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Wendi Triplet Mom	Re: Record of effective and ineffective medications	#78	[url]	[-]
Regular Visitor Posts: 821 03/13/07 10:26 AM	I took clomid with no visual side effects (though it made me become almost homicidal!)... or I should say no change in visual disturbances.
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ToughBunnyTwitch	Re: Did amino acids help? (Sticky: Things that have helped)	#79	[url]	[-]
Posts: 1 03/14/07 11:41 AM	Aminos, particularly Zinc Carnosine in combination with Piracetam, Aspartic Acid and GABA (I also take Menthol and Epsom's) have helped some. (Also keeping hydrated, as well as eating oily foods. Even putting my head on the floor, or resting it basket-ball-player style, helps some.) I think Carnosine in particular has helped me where other things didn't because, much to my surprise, my VS is likely a symptom of Autism Spectrum Disorder. My VS started when I was about 5 right after my last MMR shot so is likely autoimmune in nature. It's constant, day and night (although sunlight helps some, dreams tend to be tripy can only assume it's a result) for all my 30+ years. I thought it was my eyes for some time --it gets worse when I rub my eyes, forming checkers or a little donut of light like the 'bubble' from Windows Media Player-- but it also gets worse before I start to get panicked by my tinnitus, by loud noises or by multiple people talking (at least I can tell when I'm overreacting better) Ocean-wave sounds help the tinnitus a little, but haven't found anything really helpful on that front.
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papanugue	Re: Record of effective and ineffective medications	#80	[url]	[-]
Regular Visitor Posts: 231 04/11/07 11:52 AM	Remove this ad 1. Name of medication - Lamotrigine 2. Maximum dosage taken - 250mg (splitted into morning/evening) 3. Duration of treatment - 4 month 4. No effect or positive effect (if positive effect, please describe) - No effect 5. If positive effects, how long did it take to get the positive effect? --- 6. Unwanted side effects - Increase of sleepiness and dizziness 7. Additional comment - I have inreased the dosage every two weeks, started at 25mg.
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