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Amazing update-My trails

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neurogurl	Amazing update-My trails		Lead	[-]
Regular Visitor Posts: 408 04/10/07 9:22 PM	Tags : None Remove this ad Hi Guys- Okay. So, here it goes. First let me start by reminding you that I suffer from trails/afterimages which I get everyday for pretty much 10 months now. I had a best friend in high school who I stopped talking to my senior year (prom night) all because of some stupid immature thing. Well anyways, its been 8 years since I've talked to her. Thanks to myspace (an online thing where you can meet people from your area in the country and keep in touch) we were able to make up and get back in touch with eachother. She was telling me about health issues she's had in the last 8 years so we started to talk about mine too. We were having a great discussion since she suffers from migraines/simple seizures. I started telling her about my symptoms of trails/sparkles etc. I couldn't believe what she said.......... She said "ya I already know that...you still have that???" I was in shock. I said, what do you mean? She said "you used to complain about seeing trails in highschool...maybe like sophomore year...don't u remember. I couldn't remember. She said, remember in math class you sat behind me and you poked me on the back one day and asked that I watch your hand move and asked if I saw a trail. Then one day we were at your house and you did the same thing and moved you hand back and forth and asked if i saw a trail. Oh my god...I remember now. I remember episodes when I was younger of seeing trails. They were not constant, but episodic. Only now, now that im 25 are they constant. Was this an underlying condition I've had all my life and only comes out now???
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ksomething	Re: Amazing update-My trails	#1	[url]	[-]
Registered User Posts: 5010 04/11/07 2:23 AM	Persistent aura without infarction Description: Aura symptoms persisting for more than 1 week without radiographic evidence of infarction. Diagnostic criteria: A. The present attack in a patient with 1.2 Migraine with aura is typical of previous attacks except that one or more aura symptoms persists for > 1 week B. Not attributed to another disorder Your experience with the trails fits to these diagnostic criteria. In highschool you had attacks of migraine aura without headache (a variety of migraine with aura) with the trails, and then later you had the same except that the trails are now lasting longer than 1 week. That's the definition of persistent aura without infarction.
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neurogurl	hi	#2	[url]	[-]
Regular Visitor Posts: 408 04/11/07 8:45 AM	Yes Ksomething but even can a migraine seriously last for over 10 months. EVERYDAY.
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starrant	Re: hi	#3	[url]	[-]
Regular Visitor Posts: 1872 04/11/07 9:06 AM	Persistent migraine aura is a COMPLICATION of migraine aura. No, I don't think we are having 24/7 migraine auras our whole life, although I suppose that is a possiblity. Instead, I think essentially what has happened, is a transitory migraine aura has somehow "damaged" our visual cortex neurons (Lord knows the exact nature of this "damage" or "alteration" that eludes all present day scanning techniques, except maybe a qEEG or SPECT/PET). The alterted neurons now are haywire and hence, we have visual snow and other visual symptoms. Think the visual equivelent of Parkinsons disease (I think that is a disease where someone will have constant uncontrolled movement of their arms??) Instead of constant arm movement, we have constant visual hallucinations resulting from the probably irratically firing neurons. (a mild permanent seizure in the visual cortex???) Some people slowy heal over time, and some find a drug that works, but most will probably have to live with it. Now you are asking why me?? Excellent question. We are the extremely unfortunate few who have gentetically "weak" visual cortex neurons suseptible to this "alteration" or "damage". See, other people have normal neurons that can withstand several transitory migraine auras, but no, not us. I think in our last lifetime, we went around blinding people, and now this is the Hell that God has reincarnated us into. It will all come to an end someday!!
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ksomething	Re: hi	#4	[url]	[-]
Registered User Posts: 5010 04/11/07 12:22 PM	" Yes Ksomething but even can a migraine seriously last for over 10 months. EVERYDAY. " Yes, that's the definition of "persistent aura without infarction"
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neurogurl	Re: hi	#5	[url]	[-]
Regular Visitor Posts: 408 04/11/07 1:19 PM	But what is causing persistent aura...a migraine???? If its a migraine causing persistent aura then that part I just don't get. Migraines are episodic...can u seriously have a migraine for 10 months? And if it is a migraine causing persistent aura then it has the potential to go away .... right?? because you can't have a migraine forever
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starrant	Re: hi	#6	[url]	[-]
Regular Visitor Posts: 1872 04/12/07 8:51 AM	Ksomething, what do you think about the accuracy of my last post?
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ksomething	Re: hi	#7	[url]	[-]
Registered User Posts: 5010 04/12/07 11:18 AM	Remove this ad It's a sort of speculation which I don't like because it tends to make people insecure about things which are quite clear, only because there are some things which are not (yet) 100% clear. It is one thing that the operationalised criteria of persistent aura permit the making of the diagnosis with a great degree of probability, given that all the criteria for "definite" persistent aura are met. Fullstop. And it's another thing that current medical science does not yet understand very well how the pathomechanism of persistent aura is working. Again fullstop. There are suggestions that it may be cortical spreading depression or oligaemia (lowered blood floow) in regions of the brain, but there are no good data yet and no one currently really understands the pathomechanism of persistent aura. But speculations like yours tend to have the impact that the reader has the impression that the whole "persistent aura" issue is questionable and that there is no solid ground to it, which isn't the case, because there are strict operationalised criteria which allow to make the diagnosis.
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ksomething	Re: hi	#8	[url]	[-]
Registered User Posts: 5010 04/12/07 11:27 AM	"Think the visual equivelent of Parkinsons disease" This analogy is totally misleading. If one can say one thing for sure, then it's that persistent aura is not based on a chronic degenerative process, with continuously increasing loss of neurons in certains parts of the brain, as is the case in Parkinson's or Alzheimer's disease. The clinical course of persistent aura excludes that: it doesn't start slowly progressive, but in the vast majority of cases with an abrupt onset, and it has - in the majority of cases - a stable course or a course with remissions and recurrences of episodes, rather than a continuously worsening course.
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ksomething	Re: hi	#9	[url]	[-]
Registered User Posts: 5010 04/12/07 11:28 AM	"We are the extremely unfortunate few who have gentetically "weak" visual cortex neurons suseptible to this "alteration" or "damage"." The genetical factors plays a great role (as it does in migraine in general).
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starrant	Re: hi	#10	[url]	[-]
Regular Visitor Posts: 1872 04/12/07 2:24 PM	I don't know - my vision seems to be worse than 8 or 9 years ago when this all started. In my case it seems to be very slowly progressive. One thing is certain - I have yet to see any kind of improvement to my vision. A day where I wake up and think, man my vision is better!!. The sheer chaos isn't as bad! Also, would Parkinson's disease be a disease where basically certain neurons won't stop firing??? I mean these non-stop firing neurons have to be responsible for the constant limb movement right? You can't have any motion in your muscles without the electircal signal comming in from the brain, so if your limbs are moving uncontrollably, than in a sense, I was just speculating that you have to have constantly firing neurons that won't shut off. Visual snow really makes sense to me if it is the result of constantly firing neurons that the higher brain picks up as something to see. See, when you have a normal, tansitory migraine aura, isn't the crap that you are seeing at the time the result of out of control neurons??? I forget the term thats used, but during a transitory migraine aura, the reduced blood flow cause the neurons to go hyperactive resulting in the hallucination you see??? So if I have the constant hallucination of visual snow, isn't that basically a permanent faulty neuron firing??? I don't know what I am talking about. I am just so frustrated that I have no idea what is going on with us. I feel like despite how much we will advance medically throughout my life, we still won't know hardly anything about visual snow. I know one thing for sure. Me and God are going to have a long chat the moment I die........ Hopefully I will at least have an answer then.
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ChelleWMCN	Re: hi	#11	[url]	[-]
Regular Visitor Posts: 428 04/13/07 11:37 AM	Starrant, My timeline is like yours...My vision has worsened continuously since the onset four years ago. I have had no remission of the symptoms. Every day, I worry how much worse can it get? I fear total vision loss...from either this malady taking its course or from me stabbing my eyes out during a fit of desperation.
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starrant	Re: hi	#12	[url]	[-]
Regular Visitor Posts: 1872 04/13/07 2:15 PM	*Quote:* or from me stabbing my eyes out during a fit of desperation. Man don't give me any ideas!!! Sometimes I think that if I were completely blind, then my pain would stop.... This is a different kind of visual problem. Its not that our vision is "bad" per se. In fact we basically see more than other people!! But our vision is very painful!!!!
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SwedeP	Re: hi	#13	[url]	[-]
Regular Visitor Posts: 164 04/14/07 2:54 PM	Dear Ksomething: I agree that the abrupt onset is not suggestive of a slow degenerative process. However, if persistent aura constitutes a persistent vasoconstrictive or vasospastic state, then it seems possible that there could be cummulative ischemic or metabolic damage. Even in conventional migraine gradual deficits of blue perception are measurable according to research at the Beckman Eye Institute in Portand, Or USA. Since blue color system has the highest metabolic demands, this progression is consistent with a persistent metabolic deficit of some kind. SwedeP
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ksomething	Re: hi	#14	[url]	[-]
Registered User Posts: 5010 04/15/07 10:00 AM	Remove this ad SwedeP My argument of course was made as an argument against dedgenerative disease as the main mechanism. It was not my intention to deny that there is also a variety with progressive course, but it's only one among several types of courses, and the fact that besides progressive course there also exists the abrupt onset course is a major argument against a degenerative process (like in Parkinson's disease - the comparison with PD prompted this discussion)
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