After holiday in Canaries I feel good! in General Discussion Forum

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After holiday in Canaries I feel good!

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janey	After holiday in Canaries I feel good!		Lead	[-]
Regular Visitor Posts: 1008 04/09/08 3:22 PM	Remove this ad I would just like to report, I have just come back from Lanzarote and a number of symptoms have changed. Whilst I was there, my visual snow etc etc was non existent. Also my sense of smell came back and my sense of taste, which I will remind you has been absent for about 10 years. I have been back for 3 days and I can still taste and smell....YAY!!!! It is sooooo fab, however, my visuals are creeping back very slowly. Little spots and sparkles but not too bad. So what happened????? Was it the Vitamin D over load from the sun???? The sea air ??? Or the Jack Daniels over load? Any ideas anyone? Last Edited By: janey 04/09/08 3:25 PM. Edited 1 time.
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jruddy		#1	[url]	[-]
Regular Visitor Posts: 413 04/09/08 9:56 PM	Hmm... interesting and Great News! What was the weather like? What is your weather like where you are now? How much time did you spend indoors versus outdoors? How much time do you spend indoors at home. How much TV did you watch then versus now? What about Computer use? I'd say relax, enjoy life and don't worry about it. Stay away from the tv and computer, get as much sun as you can, go outside and relax.
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pocanut		#2	[url]	[-]
Regular Visitor Posts: 652 04/10/08 3:55 AM	wow this is fab! vitamin d?? relaxation as opposed to stress??
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janey		#3	[url]	[-]
Regular Visitor Posts: 1008 04/10/08 10:32 AM	Hi, if only I knew the specific thing that has made me feel so much better. The temperature was a lot hotter there than here in the UK. HOt dry atmosphere, sea air., I was outdoors 12 hours a day as opposed to being indoors soooo much in the UK, cos its soooo bloody cold most of the time.....also my tinnitus symptoms changed. They improved greatly BUT I put that down to being exposed to cabin pressure on the air craft......who knows!!!
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shannon3fh		#4	[url]	[-]
Regular Visitor Posts: 449 04/10/08 11:21 AM	hmmm maybe i should move there lol
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Jonny4Life		#5	[url]	[-]
Regular Visitor Posts: 180 04/10/08 3:08 PM	Great to hear Janey. For your VS to be non existent sounds amazing. Maybe we should all get together and go on a holiday to Lanzarote and see what happens
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ksomething		#6	[url]	[-]
Registered User Posts: 5010 04/10/08 3:46 PM	Janey, how long (how many days) was visual snow absent and sense of smell and sense of taste fully recovered? which other symptoms were fully recovered and for how long?
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ksomething		#7	[url]	[-]
Registered User Posts: 5010 04/10/08 4:21 PM	You wrote that you always had visual snow ("vs lifer"), so if the visual snow was completely gone during your holiday this would be a full remission after over 20 years duration of symptom. This would be the longest time reported so far after which a full remission of a symptom brought on by am episode of PMA has occurred. For the sparkles, spots (also floaters?) which were brought on by the 3rd episode of persistent aura in September 2006, it would be a full remission after 1 1/2 years of duration. Please tell how long (days/weeks) the visual snow was completely absent? and how long were the sparklers, dots (and other -which? - visual symptoms?= completely absent?
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janey		#8	[url]	[-]
Regular Visitor Posts: 1008 04/11/08 11:00 AM	Hi I have to say that I did not notice visual problems for the whole 7 days of my holiday, my sense of smell and taste came back on day 2, after I had been swimming in the sea which was very very salty. My sense of taste and smell is still present on and off now, almost a week after I have returned home, I am praying that it remains because I am enjoying it so much. I will probably get fat because I am having a taste of all the things I havent tasted in years. The tinnitus was absent for about a week, the whole time I was away, but returned yesterday, I think it is still a bit quieter though. My joint pain was absent for the whole week I was away but has returned once I arrived home. I notice the joint pain seems to be present when the weather is damp. I will have to keep an eye on this but it always seems worse before the rain comes. Only 8 months till my next holiday
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ksomething		#9	[url]	[-]
Registered User Posts: 5010 04/11/08 11:22 AM	Can you tell the exact dates of these 7 days? Last Edited By: ksomething 04/13/08 7:46 AM. Edited 1 time.
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janey		#10	[url]	[-]
Regular Visitor Posts: 1008 04/11/08 11:37 AM	Remove this ad 31st March-- 7th April
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ksomething		#11	[url]	[-]
Registered User Posts: 5010 04/11/08 11:42 AM	Then the period where you didn't see the visuals lasted even 8 days, right? Last Edited By: ksomething 04/13/08 7:44 AM. Edited 1 time.
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janey		#12	[url]	[-]
Regular Visitor Posts: 1008 04/12/08 9:42 AM	I would have to say 7 days because I did not notice any symptoms only whilst on holiday.....not whilst travelling.
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ksomething		#13	[url]	[-]
Registered User Posts: 5010 04/12/08 1:02 PM	Hi Janey, I have posted your report here, it makes the point suggested there even stronger ( http://www.migraine-aura.org/content/e27891/e27265/e42285/e42290/e42614/e56522/index_en.html )
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juliedeeinthesnow		#14	[url]	[-]
Regular Visitor Posts: 397 04/14/08 8:48 AM	Janey, I'm so glad you got some (at least) temporary relief, and it gives us encouragement that changes like that might help us as well. What do you think it is that caused the remission?
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janey		#15	[url]	[-]
Regular Visitor Posts: 1008 04/14/08 10:08 AM	Hi julie I think the remission is primarily down to sunshine and particularly the extended exposure to sunshine causing a large increase in the production of vitamin D to the body and having great benefit for the health of the brain. I think that the sea air and the dry heat caused my nasal polyps to shrink.
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HopeTheyFindaCure		#16	[url]	[-]
Regular Visitor Posts: 355 04/14/08 2:01 PM	I don´t know if that happens to all of you but when I´m outside in sunny days I simply can´t notice the VS(unless I look at the sky)!!Even if I´m inside of home and point a flash light to a surface the snow disappears!!..Could it be a conection between lots of light and the perception of the swon?!
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juliedeeinthesnow		#17	[url]	[-]
Regular Visitor Posts: 397 04/14/08 7:50 PM	A doctor I work with attended a seminar about 2 weeks ago, and told me that they're now starting research studies giving massive doses of Vitamin D to MS patients--it made so much sense; for years we've been wondering about MS happening in northern climates and suspecting it was viral or something. I don't believe any viral cause was nailed down. But maybe it's not. Maybe it's just one of the problems of D deprivation due to lack of sunlight. Anyway, they're starting to turn to neural effects. Also he said that at the seminar that they reported Vitamin D is labeled a vitamin, but they're finding that it acts more like a hormone in the body,and effects many many systems. It's just interesting. Let us know how long the benefit is there, OK? Oh, and I had to take Flagyl (an antibiotic) for several days--I noticed late in the course the vs was gone and is only now slowly returning.
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Neurogurl		#18	[url]	[-]
Regular Visitor Posts: 297 04/15/08 9:20 AM	This is great news Janie!! I am so happy for you. You mention Vitamin D overload..that just might be it!! Come to find out, after my doctor did more testing...I have a very low Vitamin D. Hmm
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janey		#19	[url]	[-]
Regular Visitor Posts: 1008 04/15/08 10:36 AM	Thanks for all comments, Julie, i would be really interested in any further information you might have on the vit D subject, this is very interesting. I really feel lack of sunlight is a big issue here. I always turn to nature for the answers to my problems and I feel that as a human I should be spending more time outdoors than I do. However society has turned us into home based creatures. That and the cold weather, I do shy away from the cold. Hi neurogurl, great to hear from you and interesting comments...... The benefit of the holiday is fading fast, visuals were back yesterday in a big way, and my sense of smell and taste is getting less every day In fact I dot think Ive had it present for even 1 hour today, just fleeting minutes here and there. Last Edited By: janey 04/15/08 10:40 AM. Edited 1 time.
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jruddy		#20	[url]	[-]
Regular Visitor Posts: 413 04/15/08 12:57 PM	Remove this ad So what we need to do is pool our money and buy an island somewhere warm and sunny, or buy shares in a cod liver oil company? The PAWI colony. All visual disturbances welcome! Now where's I put that lottery ticket? (Could this be a weird combination of SAD and Migraine?)
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After holiday in Canaries I feel good!

After holiday in Canaries I feel good!