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Confirmation of relationship between sound and my VS

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jruddy	Confirmation of relationship between sound and my VS		Lead	[-]
Regular Visitor Posts: 413 04/06/08 7:40 AM	Remove this ad I was relaxing, listening to an audio book and I had the volume up much higher than usual. I was laying down and there was a pattern on the ceiling from one of the lamps. It was dancing / wiggling / vibrating. I thought maybe the filament was going in the lamp (it is an old incandescent bulb) and asked my wife if the pattern was moving, she said no and actually showed a rare bit of pity for me. She complained that she could hear the audio book so I turned the volume down and shortly after the light pattern on the ceiling stopped dancing/wiggling/vibrating. Intrigued I turned the volume back up, and almost immediately the pattern started dancing/wiggling/vibrating again. The time was around 9:45 pm, when my VS is usually bad anyways. I did notice the second time that my VS did get courser/grainier with the louder audio stimulation. Shortly afterwards my wife turned out her lamp (such is life with two small boys) and the experimenting ended. This supports my previous experiment with loud techo music and increased after images. I do seem to have some kind of connection between audio stimulation and VS. Now, how do I tell my Neurologist this... and will he care? Edit - I was having increased myoclonic jerks with the louder noise as well. I really do wonder if Migraine and Epilepsy are more brother and sister than distant cousins... Last Edited By: jruddy 04/06/08 7:46 AM. Edited 1 time.
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Jonny4Life		#1	[url]	[-]
Regular Visitor Posts: 180 04/06/08 10:38 AM	You sure do love your experiments. Much more productive than my method of trying to ignore everything and hope it all goes away. Now, the reason i'm replying is that i get a similar reaction when i'm eating something crunchy (e.g fox's extremely chocolately cookies, they taste sooo good ) while looking at a monitor i.e the whole screen vibrates as i eat. Maybe the vibrations from your headphones were more subtle yet invoking a similar reaction (or not as the case maybe) Anyone fancy a cookie?
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jruddy		#2	[url]	[-]
Regular Visitor Posts: 413 04/06/08 12:02 PM	Ha! I remember (this was in 1988 mind you) watching the LED digits on the pinball machine in the instructor's canteen at Ipperwash ACC bounce when I was crunching stuff. Everyone thought I was mad, except one girl who also saw them bounce when she crunched stuff. No one else saw them bounce. Weird eh? It could be the same phenominon, but the other time (techno music) wasn't with headphones. Also it took around a minute or two after turning down the audio book for the weird effect to stop. Maybe my marbles were still rattling though... lol I've have weird stuff happen, including DP during loud moments when out and around the kids.. Ignoring works great for me until something odd happens to catch my attention, then my insatiable curiosity takes over. I'd better watch out, curiosity killed more than one cat! Last Edited By: jruddy 04/06/08 12:05 PM. Edited 2 times.
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shannon3fh		#3	[url]	[-]
Regular Visitor Posts: 449 04/06/08 12:44 PM	"You sure do love your experiments. Much more productive than my method of trying to ignore everything and hope it all goes away" hehe me too.
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SopuliSusie		#4	[url]	[-]
Posts: 1496 04/06/08 1:40 PM Administrator	I am a big fan of experimenting. In the case of VS, I really think it is a way of "owning" the disorder. You're sort of facing it straight on, but at the same time you make yourself sort of a detached observer. I think it helps in dealing with the whole thing psychologically. Need to cheer yourself up? Watch the Kitty Cat Dance!
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jruddy		#5	[url]	[-]
Regular Visitor Posts: 413 04/06/08 2:36 PM	It does help me to remain analytical rather than emotional. Or perhaps the anti-depressants help me to be analytical...? It certainly does suck having VS, but when you look around at people who have conditions like ALS, Parkinson's, Huntington's, Terminal Cancer, Muscular Dystropy and Cerebral Palsy, while VS does impact my life in a major way, I count myself lucky that I haven't drawn one of those lots that results in me losing all physical or mental capabilities (or both). Not that depression or any other aspect of VS is a walk in the park, at least I can still take a walk in the park, so to speak...
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Jonny4Life		#6	[url]	[-]
Regular Visitor Posts: 180 04/06/08 3:31 PM	20 years ago, that's crazy. Now you know of two people who experience the same thing I think you'll do alright Ruddy as you seem have the right mind set. What keeps me sane is the thought that this is only a temporary existence and no matter what happens to me it will be a bittersweet moment when i finally pass and find out the answer to the greatest mystery of them all. In the meantime you have me thinking whether i should get on those anti-depressants and become more curious Last Edited By: Jonny4Life 04/06/08 3:33 PM. Edited 1 time.
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ChelleWMCN		#7	[url]	[-]
Regular Visitor Posts: 428 04/07/08 10:51 AM	jruddy wrote: This supports my previous experiment with loud techo music and increased after images. I do seem to have some kind of connection between audio stimulation and VS. Now, how do I tell my Neurologist this... and will he care? Edit - I was having increased myoclonic jerks with the louder noise as well. I really do wonder if Migraine and Epilepsy are more brother and sister than distant cousins... Jim, You can tell your neurologist that a neuro-ophthalmologist and an epileptologist in Utah are studying the co-relation between sound and visual distortion in persons with neurological illnesses such as ours. We have a varient of synaesthesia that has been proven clinically by a test I have had performed - MEG - it is no longer based on anecdotal evidence. In fact, one of my specialists asked if I knew of anyone else who could participate in the study she is working for this matter. If you would like to be a part of the study and want to come to Utah for a "vacation", I am sure they would perform the same tests on you so they can collect more data...and we could do lunch! Michelle
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ksomething		#8	[url]	[-]
Registered User Posts: 5010 04/07/08 2:35 PM	jruddy, I have added your new experiment to your previous observations ( http://www.migraine-aura.org/content/e27891/e27265/e42285/e52203/e58029/index_en.html ) Could you provide a picture illustrating the visual effect of this last effect. SopuliSusie, your phrase of "owning" vs is excellent... it's the dimension of control, you are in control of the vs if you take this position to it, that's also why I think knowing about the features and mechanisms of vs (worsening factors etc.) helps to gain control and better cope with it http://www.migraine-aura.org/content/e27891/e27265/e42285/e57292/index_en.html Last Edited By: ksomething 04/07/08 2:43 PM. Edited 1 time.
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jruddy		#9	[url]	[-]
Regular Visitor Posts: 413 04/07/08 8:06 PM	I wonder if I could convince someoe locally to confirm my anicdotal observations through an MEG... I will try and do an image... I will have to think of the best way to illustrate it.
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jruddy		#10	[url]	[-]
Regular Visitor Posts: 413 04/08/08 9:45 AM	Remove this ad Lamp Light on Ceiling - Regular Lamp Light on Ceiling - High Octane - (or High Volume) [IMG reference removed for everyone's health and safety... ugh...] link is below for the brave and curious... http://i5.photobucket.com/albums/y166/ruddy_canuck/lamplight_worse.gif It's not perfect, but it's pretty close, The amplitude is a bit exaggerated, but not by much but enough that I feel like fixing it and the snow shouldn't really be moving with the lamp, at least not that I noticed but I can't figure out how to fix that. I think some migraine / VS sufferer's here would say there is something quite familiar and migraine-like about it though, but I can't put my finger on it. Maybe it's the speed of the movement? Bleh, I feel ill! ha ha...!!! Updated image is below. It is much more accurate and much less vomit inducing... though the snow doesn't do the 'snow' thing... and I forgot to change the graininess in this version... rats... Last Edited By: jruddy 04/08/08 10:05 AM. Edited 3 times.
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ksomething		#11	[url]	[-]
Registered User Posts: 5010 04/08/08 1:41 PM	jruddy, do you have a program to produve versions of the 3 images with 490 pixel width? If yes, can you post such smaller versions too
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ksomething		#12	[url]	[-]
Registered User Posts: 5010 04/08/08 1:49 PM	I seem to have a language/vocabulary problem here. Where did you describe the acoustic stimulus in the last post: Here: "High Octane - (or High Volume) [IMG reference removed for everyone's health and safety... ugh...] " Does high octane refer to the light ? High Volume relates to the audio sound, right? What is IMG reference?
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tmoyles		#13	[url]	[-]
Regular Visitor Posts: 89 04/08/08 1:52 PM	"IMG reference removed" means that instead of displaying or hotlinking the image directly in the post, he went back and edited it to provide a hyperlink to the image instead.
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ksomething		#14	[url]	[-]
Registered User Posts: 5010 04/08/08 1:58 PM	Thanks! And what about "Octane"?
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tmoyles		#15	[url]	[-]
Regular Visitor Posts: 89 04/08/08 2:03 PM	This is speculation since I don't know specifically what jruddy is referring to, generally "high octane" refers to "high power"* so I believe that he means "here's the powerful version of this picture" or "this is what it looks like when the feeling is really strong". * - Octane refers to fuel ratings, where the higher the octane, the higher the quality of the fuel.
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ksomething		#16	[url]	[-]
Registered User Posts: 5010 04/08/08 2:11 PM	That makes sense, high octcane and high power both refer to the high intensity of the acoustic stimuli.
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ksomething		#17	[url]	[-]
Registered User Posts: 5010 04/08/08 4:33 PM	jruddy wrote: Can you add the graininess in the 3rd pic?
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jruddy		#18	[url]	[-]
Regular Visitor Posts: 413 04/08/08 4:49 PM	OK, when I have a chance I will add grainyness to the 2nd image, reduce the size of the images and stop using colourful words.
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jruddy		#19	[url]	[-]
Regular Visitor Posts: 413 04/08/08 9:28 PM	I've tried again this evening and these are pretty close: Standard Evening VS. Worse VS and wobbly lamp shine on ceiling with audio stimulation. It didn't need to be very loud tonight. I normally listen in bed at lower volume with noise cancelling headphones on. Turning the noise cancelling off doesn't make a difference either. http://en.wikipedia.org/wiki/Noise-cancelling_headphone My tired mind can't figure out how to get the VS to dance and the light to wiggle at the same time, please don't ask me to make the snow dance... Last Edited By: jruddy 04/08/08 9:35 PM. Edited 2 times.
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ksomething		#20	[url]	[-]
Registered User Posts: 5010 04/09/08 3:13 AM	Remove this ad Thanks!
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Confirmation of relationship between sound and my VS

Confirmation of relationship between sound and my VS