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New girl in the UK

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ukshell		#21	[url]	[-]
Registered User Posts: 19 02/20/08 1:57 PM	Remove this ad Hi KP. Heres the survey. Thank you 1. Name or screen name (optional): UKSHELL 2. Email (optional): 3. Location (optional): York UK 4. Age: 21 5. Sex: Female 6. Nationality and Race (optional): British 7. Do you have classic migraine (migraine with aura) or common migraine (migraine without aura)? When did it begin? I've suffered from migraines since i was little. Maybe 2 a year. I always get a migraine with aura, zig zags and visual problems. I also suffer from daily headaches now and visual disturbances. 8. What do you take for your classic or common migraine and does it help? I always used to take nurofen and sleep with the migraine and it worked. I always felt rough for the next few days. Now i suffer from daily headaches, nothing seems to work. 9. Have you been diagnosed with persistent aura (prolonged migraine aura status)? No 10. What is your visual problem and how long does it last? I seem to have static visual, which is worst upon waking. My right eyes seems to be worst in the visual field. Occasionally i see floaters and black small dots. I get alot of after images of everything even things that arent light etc. My images seems to take on light where it was dark and dark where it was light. 11. Any other problems that you think might be related? My doctor seems to think it is aniexty. It could be but i am more anxios now i have these problems. I also have a lot of tension in my neck, back and shoulders. Pains in ears as well as head. Very tired all the time 12. What do you take or do for your vision problem and does it help? Nothing 13. Have you found a trigger for your vision problem? No 14. What tests have you had and the results? Havent had anything done 15. Drug history (pre VS) None 16. Drug history (post VS - effect on VS - negative, positive, not at all) None 17. Do you have a positive family history for migraine? If yes, who is affected? No 18. Other information you want to provide?
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ksomething		#22	[url]	[-]
Registered User Posts: 5010 02/20/08 2:17 PM	Thank you! Can you describe the onset of the persistent vs as detailed as possible? Was it during the day? Or did you note oit first immediately afterawakening? Did you have a headache this day? Any other associated symptoms?
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IanKC		#23	[url]	[-]
Posts: 2955 02/20/08 3:18 PM Administrator	Just wanted to say hello and welcome Michelle! So many new members I can't keep up anymore, LOL Hope you find some relief here http://www.visualsnow.com \| Lots of information on Visual Snow http://www.iancasey.com \| My blog
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ukshell		#24	[url]	[-]
Registered User Posts: 19 02/29/08 10:40 AM	Hi Ksomething Sorry for delay, have had no internet. To be honest its been one of those things that i just noticed. I noticed it during the day as i spend a lot of time on a computer. I will have had an headache this day, along with every other day! It is worst at night when i close my eyes, the static is mad! Also upon wakening it is worst. I am very dizzy alot of the time. And vertigo when standing. Sharp pains in head, sore neck, i also sometimes feel like parts of my body are vibrating, like my shoulder blades or even in my head sometimes.
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ksomething		#25	[url]	[-]
Registered User Posts: 5010 02/29/08 10:57 AM	Hi ukshell, before you got the persistent visual snow, did you ever have attacks of short-lasting (just few minutes) visual snow? From which age on did you have the recurring attacks of migraine with aura?
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ukshell		#26	[url]	[-]
Registered User Posts: 19 02/29/08 11:05 AM	Hi KSomthing No i dont think i have. I wear glasses and contact lenses and have always perfect vision and would have noticed vs even short episodes. From as young as i can remember. I think i was about 6 or 7 when i ate a whole easter egg and developed a migraine! My mum said it was from eating all that chocolate but from then on i have suffered from migraines. I also feel that the vs gets worse during exercise. Ksomething, what do you think this all is? Everyone here suffering from the same syptoms but no treatment. What is your theory on vs? and my situation. Sorry if you have answered this before but i cant find anything on it. Thank you
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ksomething		#27	[url]	[-]
Registered User Posts: 5010 02/29/08 11:17 AM	Remove this ad With a history of classic migraine (migraine with aura) from childhood on and given that you never consumed hallucinogenic drugs (which may also cause persisting perception problems) it's probable that your persistent visual snow is caused by a complication of the migraine with aura, i.e. persistent aura without infarction. You find more information about this on this website http://www.migraine-aura.org/content/e27891/e27265/e42285/index_en.html
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ksomething		#28	[url]	[-]
Registered User Posts: 5010 02/29/08 11:18 AM	Can you make a picture illustrating your visual snow experience?
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ukshell		#29	[url]	[-]
Registered User Posts: 19 02/29/08 11:27 AM	Thank you. I will try and do a picture. Although i failed art! I did smoke cannabis, about 2 years ago. Only once, i felt terrible after. But my problems did not start till 18 months later. No connection?
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ksomething		#30	[url]	[-]
Registered User Posts: 5010 02/29/08 11:35 AM	In the official definition of HPPD (hallucinogenic persistent perception disorder), cannabis is not recognized as a drug that can cause HPPD. Judged from the responses to this survey, there seem to be a few where cannabis use might have caused HPPD, but in these cases there is a closer temporal connection and of course you can never exclude in regular cannabis use that some portion was laced with an actual hallucinogen (see http://www.migraine-aura.org/content/e27891/e27265/e42285/e42442/e42448/index_en.html ) In your case I would see no connection with the cannabis use.
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ukshell		#31	[url]	[-]
Registered User Posts: 19 02/29/08 12:08 PM	ok great. I am not sure if you have taken on this role full time? What is your background etc? and why vs?
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ksomething		#32	[url]	[-]
Registered User Posts: 5010 02/29/08 12:20 PM	I am a neurologist & psychiatrist and I am engaged in the research about persistent perception problems via the Sofia Greene survey (see http://www.migraine-aura.org/content/e27891/e27265/e42285/e42289/index_en.html ) and, no, it's not fullttime
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ukshell		#33	[url]	[-]
Registered User Posts: 19 02/29/08 12:27 PM	I have been referred to a Psychiatrist, is it worth me going? Also do you believe in Chiropractors? Is something going to be produced from the research?
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ksomething		#34	[url]	[-]
Registered User Posts: 5010 02/29/08 12:35 PM	Remove this ad "I have been referred to a Psychiatrist, is it worth me going?" Everyone with a clinical presentation of persistent visual snow should have an opthalmological, a neurological, and a psychiatric assessment ( see http://www.migraine-aura.org/content/e27891/e27265/e42285/e42442/index_en.html ) "Also do you believe in Chiropractors?" If this therapy is meant as a treatment of the persistent vs, I would advise against it (see http://www.migraine-aura.org/content/e27891/e27265/e42285/e42287/e58369/index_en.html ) "Is something going to be produced from the research?" Yes, the results will be available online on www.migraine-aura.org and there will be publications (medical articles) based on the findings of the survey.
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