What do you believe caused your VS? in General Discussion Forum

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What do you believe caused your VS?

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juliedeeinthesnow		#21	[url]	[-]
Regular Visitor Posts: 397 01/20/08 7:45 PM	Remove this ad Susie, what was the viral link to the CFS? Was it EBV? Was it CMV? (Janey got hit by Cytomegalovirus, didn't she?) What lousy timing that you got hit with that while you were already in the hospital....
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SopuliSusie		#22	[url]	[-]
Posts: 1496 01/20/08 10:18 PM Administrator	I had EBV as a teenager. When I got sick with CFS, it was basically a really bad flu that came and never left. I had a high fever and felt like crap, but I was running an experiment and was still dragging myself through 14 hour work days. Nothing like collapsing and then getting back up to work some more! I kept collapsing and ending on the ground, nearly passing out, and then I lost half my vision with the start of the aura, and all of that got me stuck in the hospital for weeks. They never identified the virus. I ended up with all kinds of immune markers in my spinal fluid, but who knows if that is related or not. When it rains, it pours I guess. Need to cheer yourself up? Watch the Kitty Cat Dance!
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pocanut		#23	[url]	[-]
Regular Visitor Posts: 652 01/21/08 2:18 PM	jonny4life - quitar hero is often played in my house, i;ve only played it few times and noticed nothing afterwards. But its funny you should say that because my boyfriend plays it a lot and he came to bed the other night and told me about how he'd looked at a cushion just after playing and it looked like it was moving like you described. i am not that keen to try it and see what happens!!!
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ChelleWMCN		#24	[url]	[-]
Regular Visitor Posts: 428 01/21/08 2:51 PM	What do I believe caused my VS? I have a really simple answer for me...my husband was going to Alaska for a business trip for two weeks...He invited me to go, too. I wanted to go with him so badly, but I was in the middle of a law class that I couldn't ditch even one day. I was so angry at myself for putting my career before the dream I had always dreamt...going to Alaska. That is when I really noticed all my problems starting...Dec 2002. This summer, we are planning a trip to Alaska...at last! Maybe I will be cured when I finally get to visit the "final frontier."
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Jonny4Life		#25	[url]	[-]
Regular Visitor Posts: 180 01/21/08 3:07 PM	pocanut wrote: jonny4life - quitar hero is often played in my house, i;ve only played it few times and noticed nothing afterwards. But its funny you should say that because my boyfriend plays it a lot and he came to bed the other night and told me about how he'd looked at a cushion just after playing and it looked like it was moving like you described. i am not that keen to try it and see what happens!!! Go on, you know you want to. Next time your boyfriend lets you play, remember to look at a cushion afterwards! Although i suspect it only really works if you really get into it and over concentrate at all those scrolling coloured buttons. It's a shame you'll probably never get into and play if for an hour non-stop. Would have been interesting to hear if it altered your VS also.
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Jonny4Life		#26	[url]	[-]
Regular Visitor Posts: 180 01/21/08 3:13 PM	ChelleWMCN wrote: What do I believe caused my VS? I have a really simple answer for me...my husband was going to Alaska for a business trip for two weeks...He invited me to go, too. I wanted to go with him so badly, but I was in the middle of a law class that I couldn't ditch even one day. I was so angry at myself for putting my career before the dream I had always dreamt...going to Alaska. That is when I really noticed all my problems starting...Dec 2002. This summer, we are planning a trip to Alaska...at last! Maybe I will be cured when I finally get to visit the "final frontier." Wouldn't it be magical if the euphoria of making that trip could somehow reverse the VS? Fingers crossed, you never know.
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pocanut		#27	[url]	[-]
Regular Visitor Posts: 652 01/21/08 4:59 PM	jonny4life ha ha, yeah i wouldn't mind having a good go at it, but its a fight, what with him and the two kids wanting to play it!!! Do you play it on Xbox live? if so maybe we could battle?? ha ha they are all waiting for rock band to come out.. should be interesting, apparently i'm on base!! we'll see. it wouldn't affect my vs i don't think as mine is only really subtle and only noticable at night in the dark or in very light backgrounds. My main symptom is trails and afterimages. It made a change him panicing about his vision and not me though!!! he thought i'd infected him. Now he's releived its quite normal..
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Jonny4Life		#28	[url]	[-]
Regular Visitor Posts: 180 01/21/08 6:54 PM	Haha poca, that would have been a right laugh. I'm behind the times though and only have Guitar Hero 2, which has no online play unfortunately. Mind you, i'm not even on xbox live at the moment but that will change soon enough. Lets keep that one on the back burner eah, give you time to practice
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pocanut		#29	[url]	[-]
Regular Visitor Posts: 652 01/22/08 5:25 AM	yes give me a good while to practice !! we have guitar hero 2 and 3 and i'm pretty sure you can play both online. but like you say though, you need the connection. Let me know when you live and we'll battle!!! seriously though i am bad at it..
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jruddy		#30	[url]	[-]
Regular Visitor Posts: 413 01/22/08 10:16 AM	Remove this ad I suspect my VS is migraine related, possibly sparodic hemiplegic migraines, though I may have had a few TIAs over the last month as well... My MRI is in less than a week, will wait and see if anything shows up on there. I've started on Topamax 25mg/day for now - no real effect yet so far as I can tell except drinking 2 beers makes me completely drunk (oops). I'll be going up to 50mg then talk to the doctor about a higher dose. I think it counteracts the Citalopram so he wants to be careful with that... Since first getting VS (incl. After images etc) in December I've adjusted to the point where I am almost able to function normally on a day to day basis - almost...! I am sure the VS isn't getting any better and is worse on some days, I guess I'm just getting used to it and my brain is adjusting. Jim
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janey		#31	[url]	[-]
Regular Visitor Posts: 1008 01/22/08 12:16 PM	I have to add.....guitar hero makes my eyes go funny for a while to
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pocanut		#32	[url]	[-]
Regular Visitor Posts: 652 01/22/08 12:27 PM	are you on xbox live janey?? we could battle and talk too!
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janey		#33	[url]	[-]
Regular Visitor Posts: 1008 01/22/08 3:11 PM	Hi Gem......no I am on PS2
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juliedeeinthesnow		#34	[url]	[-]
Regular Visitor Posts: 397 01/23/08 6:21 PM	This is just a test message--my user ID got dumped again and I'll see if I can reply
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pieteranoniem		#35	[url]	[-]
Regular Visitor Posts: 48 01/25/08 2:59 PM	i'm banned from xbox live:S
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Jonny4Life		#36	[url]	[-]
Regular Visitor Posts: 180 01/25/08 3:16 PM	This thread has went badly off topic. I should never have mentioned Guitar Hero So, how you get banned from xbox live Pietera?
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pocanut		#37	[url]	[-]
Regular Visitor Posts: 652 01/25/08 4:42 PM	yes i really want to know why your banned?? I wish my boyfriend was i might actually get a decent conversation out of him once in a while.. I'm sure the novalty will wear off.. still he's had it a good six months. i'm not allowed online coz it will mess up his gamer score???? whats that all about???
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janey		#38	[url]	[-]
Regular Visitor Posts: 1008 01/25/08 5:13 PM	man flu ........whats that all about.....I am off work today with flu but my husband says I cant be that ill cos Ive never had man flu??? MEN!!!
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Jonny4Life		#39	[url]	[-]
Regular Visitor Posts: 180 01/25/08 8:10 PM	Poor Pocanut My gamersocre has only ever went up, i don't know how it's possible to lose points. He probably doesn't want you on xbox live incase you do something silly and get him banned whistles Ahh Janey, man flu. Yes, i've had this many times before. We don't like to talk about it, we just deal with it. You'll never understand how bad it can be! Count yourself lucky that you'll never have to experience it! Thanks for the laugh you two, really was funny
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Sarah A		#40	[url]	[-]
Regular Visitor Posts: 229 02/03/08 5:34 PM	Remove this ad My VS started one morning after driving in very bright sunlight for about 30 minutes. I came inside feeling dazzled by the light and that sensation never went away. The day before I had had 2 scinilating scotomas in a row. (I had only experienced the scotomas a few times in my life, and those few times were all during a four month period prior to the VS onset) I read one post where someone said he thinks looking at a solar eclipse w/out a visor set off his VS. Anyone else think effects of the sun had something to do with their onset?
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What do you believe caused your VS?