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Alex has new symptoms, read all about it

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ksomething		#21	[url]	[-]
Registered User Posts: 5010 09/25/07 5:02 PM	Remove this ad Which ear problems do you have?
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ksomething		#22	[url]	[-]
Registered User Posts: 5010 09/25/07 5:08 PM	In your post from Sep 6, when you reported the weakness of the left sided limbs, you noted that "I'm sure I've had this before and it must have gone away..." Do you remeber when you had such wekness of one side of the body for the first time? and how often you had it in total? Does any of the other family members have had such wekaness of one body side, with or without an accompanying headache?
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alexxx		#23	[url]	[-]
Posts: 186 09/25/07 5:23 PM Cool Dude	Thanks for your help, I will bring the possibility of PMA to my doctor's attention. I generally have had headaches which range from a dull ache to a mild pain; they are always one sided or are on some small patch on my head. They have now gone, and the weakness on one side has also gone. I have only ever had it once before, I can't remember when it was because I don't really take note. I'd guess at a year ago maybe. It was worse in my arm than leg and just felt like my arm/leg were being really "lazy" compared to my right side. The only other person who experiences this in my family is my dad, but its a whole different reason (back problems). I had a mastoidectomy 5 years ago, follow up has revealed I at present have a severe ear infection that is not improving.
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ksomething		#24	[url]	[-]
Registered User Posts: 5010 09/25/07 5:27 PM	"The only other person who experiences this in my family is my dad, but its a whole different reason (back problems)." Does your father have a motor wekaness of one side affecting both the arm and the leg on this side? Mastoidectomy right or left?
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alexxx		#25	[url]	[-]
Posts: 186 09/25/07 5:29 PM Cool Dude	Nah, he just has badly trapped nerves in his spine, they don't affect him walking but he stumbles and drops things from time to time. And its my right.
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ksomething		#26	[url]	[-]
Registered User Posts: 5010 09/25/07 5:34 PM	Thanks, I asked because this "hemiplegic" migraine (with the aura symptom of weakness of one side of body) can also occur as a familiar form, with several family members being affected by that, but your father's problem then has other causes and nothing to do with that.
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alexxx		#27	[url]	[-]
Posts: 186 09/25/07 5:40 PM Cool Dude	If you don't ask you don't know
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ksomething		#28	[url]	[-]
Registered User Posts: 5010 09/25/07 5:44 PM	As will be known by now, I like asking!
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alexxx		#29	[url]	[-]
Posts: 186 09/25/07 5:49 PM Cool Dude	Hehe, but we forgive you because you provide more answers than questions
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SopuliSusie		#30	[url]	[-]
Posts: 1496 09/25/07 7:51 PM Administrator	Remove this ad Alexxx! Ear problems and hemiplegic migraines plus the rest? You are falling apart, young man! I fell apart my first semester of college, in a medical sense, but you have me beat by far. I'm glad that you'll be seeing all the doctors. Hopefully they can get the migraine stuff under control and get you sorted out before you get more crazy symptoms! Need to cheer yourself up? Watch the Kitty Cat Dance!
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alexxx		#31	[url]	[-]
Posts: 186 09/26/07 2:47 AM Cool Dude	SopuliSusie, I was wondering whether I was one of the worst cases on here. That's not something I'm proud of by the way. And I hope so too that I get sorted, or my college is going down the drain.
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ksomething		#32	[url]	[-]
Registered User Posts: 5010 09/26/07 2:52 AM	The problem is that you are in a sort of "active" stage of the migraine disorder, with many attacks/episodes, triggered by stress, and producing more stress, making it a vicious circle. I am very confident that with appropriate neurological therapy one can sort that out and "calm" the activity of migraine. There are several approaches to that, stress reduction techniques, migraone prophylactic medications, plus the medications specifically recommended for persistent aura itself. It's only if one does nothing but just wait for the spontaneous cause, that the stress-worsening-more stress-more worsening cycle will continue or at least need longer to vanish.
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SopuliSusie		#33	[url]	[-]
Posts: 1496 09/26/07 12:27 PM Administrator	I do have you totally beat with my falling apart a year and a half ago. To beat that, you'd have to end up hospitalized for two weeks, and on a few months of bed rest... and none of us want you there. Nothing like having symptoms so bad that you end up in a rehabilitation hospital with the stroke patients because you can't walk without holding onto the walls. Them's some good times. With me, there were many months of worsening symptoms and stress on top of stress, and so much of it was migraine-related, but none of the doctors saw it that way. Or more importantly- I was always going to a university student clinic, and there wasn't a single doctor in charge of my health able to pull everything together to say: wow this girl has a lot of really atypical migraine stuff going on, and it is becoming more frequent and worse. I can't help but think that if I could have gotten it under control earlier, there might have been fewer additional symptoms or perhaps what was transient might not have turned into persistent. I think there is definitely something to the vicious circle the ksomething refers to. So don't fall apart any more than you already have!! You're not allowed to!! And remember that your whole future isn't pinned on this one semester Need to cheer yourself up? Watch the Kitty Cat Dance!
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alexxx		#34	[url]	[-]
Posts: 186 09/26/07 3:58 PM Cool Dude	Thanks once again for your help SopuliSusie and ksomething it's really good. And SopuliSusie, I haven't quite beat you yet; but I guess I don't want to really. I might be hospitalised soon but its my ear not my head; I'm trying my absolute hardest to stay sane, and thats completely true, this is a small proportion of my life, I may look back on these days and only laugh.
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ksomething		#35	[url]	[-]
Registered User Posts: 5010 09/26/07 4:28 PM	I like your basic sense of optimism, it's rationale to think & feel so and it's useful too, actually it's the best attitude one can assume dealing with that crap, pessimism, anxiety and all other negative emotions can make it worse
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D0gstar.floatertalk		#36	[url]	[-]
Registered User Posts: 1 03/05/08 8:21 AM	Hi Alexxx, Just found this post, and I have exactly the same 'wobbly lines' thing as you, but with no VS or other symptoms. Did you find anything more out about it? It's been freaking me out since last October, and a neuro, ophthalmologist and MRI scan all say there's nothing wrong with me. Cheers, D0gstar
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shannon3fh		#37	[url]	[-]
Regular Visitor Posts: 449 03/05/08 9:23 AM	hi, just wanted to say i know how it is to be in college with all these vision/ head problems. i had to stop going this past fall because of all of this!
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juliedeeinthesnow		#38	[url]	[-]
Regular Visitor Posts: 397 03/05/08 9:57 AM	This is a really interesting thread, thanks for pulling it up. I certainly understand about the wavy boundaries around objects. I have also had the "pop-up" sensation with trees/forest for most of my life. I guess it's from the high contrast in the tree bark--the more contrast (like pine trees or oad trees) the more it looks like one of those pictures designed to try to look like a 3D image but is in 2D, I guess like old antique view masters used to be. I always thought it made the trees look more beautiful, standing forward and out like that. It never caused me disorientation or concern because I thought everyone saw the forest that way. Maybe not, huh?
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jruddy		#39	[url]	[-]
Regular Visitor Posts: 413 03/05/08 2:59 PM	I get wavy lines too, mainly where two walls meet, especially of they are different colours, or lighted differently... I assumed it was just my brain trying to make sense of the snow.
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juliedeeinthesnow		#40	[url]	[-]
Regular Visitor Posts: 397 03/05/08 10:55 PM	Remove this ad After reading this thread and thinking about it, I believe this tendency to see "pop-up" is evident when I do black and white photography or in my pastel artwork. In fact, I did a series of forest pictures my husband called my "leaf phase" and the trunks of trees are focal with high contrast bark. I love taking pictures in black and white with really high contrast, like the sides of the mountains where I live. I just assumed that anyone could pull out how that contrast would replicate on film, but I'm not sure everyone sees it quite as starkly as we do. I wonder if Ansel Adams ever had migraines.....
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Alex has new symptoms, read all about it