General Discussion

Onset of puberty

feeds@yuku.com (2fries) — Sun, 08 Nov 2009 15:31:46 GMT

The topic might be a bit too personal to be asking this, but there is one other thing that seriously set me apart from other kids when I was growing up and since all of my other quirks seem to be tied to vs I thought that this one might be as well.
It's embarrassing to admit, but at forty I'm pretty much over being embarrassed by childhood crap so...

I was way...way beyond what you'd call a late bloomer, and didn't begin puberty until I was almost nineteen years...

EYE QUESTIONS / TESTS ????

feeds@yuku.com (TREtaylor) — Sun, 08 Nov 2009 12:18:09 GMT

Hi boys and girls.

Currently seeing one of the top, if not the the top retina specialists/surgeons in the world. What I like about this guy is that he thinks outside of the box every time I ask him a difficult question, he doesn't just give me some crap from out of one of his school books to shut me up. After sitting down with him and explaining to him all the symptoms of VS, and not just the symptoms I have but even the symptoms I don't have but the majority of people on...

Visual snow spreading amazingly to Left peripheral so bad that it is like there is a light over it and it distorts stuff.

feeds@yuku.com (Exarr) — Sun, 08 Nov 2009 11:24:18 GMT

It is 24/7 but I feel like it is deteriorating my peripheral vision! It started after I woke up with severe VS. I think that maybe there is a pill that will atleast stop this stupid side VS... it is almost like there is a film with like a black shade with flcikering over my eye... and it is not even there in my right eye periphery... please help because this is not just VS it is like a flickering black bit.. like when you look at the sky... I was forgeting about it and not worried but now its...

How do I put a filter on computer screen?

feeds@yuku.com (theCleve89) — Sun, 08 Nov 2009 00:05:32 GMT

I have a PC and I was wondering how to put a colored filter on screen and if it makes reading off the computer easier.

Peripheral visual snow?

feeds@yuku.com (Exarr) — Sat, 07 Nov 2009 22:15:33 GMT

When you look up at the sky and it is severe, do you ever experiance that in your peripheral vision? I noticed it and thought i had some light in the vision but it was just the snow, flickering like usual.

Sharing Thoughts

feeds@yuku.com (geet) — Sat, 07 Nov 2009 03:31:19 GMT

I guess doctors do not take VS seriously if it is not accompanied with seizures ? They just diagonose it as 'hyperawareness', 'entopic phenomenon' or 'optical migraine'. Massive tests are recommended only when the patient has VS + seizures.

Who all here have VS accompanied with seizures/or fits ?

For the girls

feeds@yuku.com (stackingcans1) — Fri, 06 Nov 2009 19:12:01 GMT

I was wondering, how does your period effect your vs? I've recieved mine and the snow has intesified some. Plus everything has more of a glare. I'm waiting till I've finished to see how my vs reacts. But it's something I've never thought of before.

Visual snow in paripheral vision extremely at times?

feeds@yuku.com (Exarr) — Fri, 06 Nov 2009 18:18:50 GMT

SOmetimes (newly so it will probably increase) in my peripheral vision (mostly left) it seems to flicker... something major is wrong with me

Waking up and it gets worse?!

feeds@yuku.com (Exarr) — Fri, 06 Nov 2009 04:59:06 GMT

What is this... I keep waking up with severe VS as all I can see and it everytime it goes away slightly but now it just is sort of the same.. all I can see is aftermages and VS wtf. This is making vision worse. This can't just keep up without a medical reason!

Sleep pattern

feeds@yuku.com (Tanfies2) — Fri, 06 Nov 2009 03:39:41 GMT

Just out of interest, what is every ones sleep pattern like on here. I know most of have trouble sleeping since we got visual snow but what I want to know, is what was it like before?

I know this may not be any relevance to visual snow but I was thinking about something the other day which made me wonder. Even before I had visual snow, my sleep pattern was always messed up. As a young kid, I would always be sent to bed on time but I'd lay awake for hours & never get my full...

A lot of trouble reading...

feeds@yuku.com (theCleve89) — Fri, 06 Nov 2009 00:19:49 GMT

I'm guessing this is a normal complaint to all of you suffering with vs. My trouble reading is getting so bad that I haven't read a book since this has all started. Under lights in my classes I get so frustrated because of the spots I see and the general lack of clarity in my vision. It has just been at it's worse today and I was wondering if there is anything I can buy or do to make it so I can read again...

NIH Update

feeds@yuku.com (Tective) — Tue, 03 Nov 2009 14:12:05 GMT

I saw my neuro-ophthalmologist this morning. She told me that a doctor from the National Institute of Health, where I applied to be a part of their Undiagnosed Diseases Program, called her to obtain more clarification on my health issues. He told her that he was interested in pursuing my case, but wanted to ensure that...

MSN and/or Yahoo

feeds@yuku.com (HopeTheyFindaCure) — Mon, 02 Nov 2009 22:06:27 GMT

Anyone here use´s msn or yahoo and wan´t to chat about this issues? Please PM me with the address. Thanks.

What other VS sufferers have this happen?/ questions for other suferers

feeds@yuku.com (Exarr) — Sun, 01 Nov 2009 21:56:30 GMT

-It is as if the static gets bright after looking into a light and adjusting to darkness.. I can't see in the dark because of this.
-Do you ever see these random dots of light in your vision?
-Do you seem to see the VS make stuff blurry/ hard to see even with vision correction?
-Are your eyes sensative to light?
-Did this happen after a migraine?
-Does this ever make you feel less aware?
-Do you have tinnitus?
-Do you feel like you can't see...

Who all are diagnosed here ?

feeds@yuku.com (geet) — Sun, 01 Nov 2009 01:01:06 GMT

Hi All,

I would like to know who all visual-snow sufferer(s) in this forum are diagonsed ? Let me elaborate, for most of us its still same - we are taking anti-depressants and are in touch with our psychologist/psychiatrist. We can't talk to our opthamologist or neuro-opthalmologist because its always the same answer they provide. They know nothing about our condition.

What all tests are required for PMA diagonosis? Could it be possible for 90 percent of VS cases, PMA...

closed eyes visualizations?

feeds@yuku.com (ddhboy) — Fri, 30 Oct 2009 13:52:00 GMT

So I'm looking at all of my symptoms and it seems that what I'm prominently getting are symptoms of closed eyes visualizations/hallucinations. In normal daylight, I have very little, if any visual noise, so my problems are mostly in low lit rooms or in the dark at night. Additionally, when I close my eyes in the dark I have patterns of a blue ball like thing constantly moving into the background with a repeating image behind it, meaning I'm getting level 3 hallucinations. Still I...

info on artificial sweetener

feeds@yuku.com (jusmill) — Fri, 30 Oct 2009 09:58:02 GMT

www.sweetpoison.com/aspartame-side-effects.html
www.organicconsumers.org/foodsafety/aspartame071905.cfm
Check out these links for some interesting reading on the side effects of artificial sweeteners.

" The methanol in aspartame converts to
formaldehyde in the retina of the eye. It causes retinal...

Breaking the cycle part 1

feeds@yuku.com (Tanfies2) — Sat, 24 Oct 2009 23:07:20 GMT

I've not been on here as much as I used to but I still do look in regularly & post every now & then if I can. As most of you know, I have had visual snow for the past 24 year & I'm soon to be 32 on 27th October. Sorry 20-12.

My visual snow was easy to live with when I was young because it was so mild but about 4 years ago, it just went 'bang' for some un-known reason...

Cranial Blood Flow

feeds@yuku.com (SnowyDottore) — Sat, 24 Oct 2009 18:22:40 GMT

Hello all!

This is going to be long but I hope also useful...
I haven't been posting for a while though I keep on regularly updating on what's going on with this forum almost every week.
I don't know if any of you remember me, i'm a 5th year med student who has been suffering from VS for more than a year and a half though I have been suffering from this condition all my life although in a very minor way up until the last year and a half as I stated.
I...

Possible Cause?

feeds@yuku.com (Neurogurl) — Sat, 24 Oct 2009 08:24:07 GMT

HI Everyone - I haven't been on here for a while because I noticed the more I stayed away the better my anxiety is...But, I really wanted to post this information. Oh, and also...not sure if this is still happening on this site...but someone was making me feel like the main cause for my symptoms is a persistent migraine...I absolutely do not believe in that theory because if it were true I would have a migraine for 3 years now, every day...that is crazy and does not make any sense at...