General Discussion

Chronic fatigue syndrome

feeds@yuku.com (vero) — Thu, 17 May 2012 00:42:00 PST

Does anyone on these forum suffer from cfs? If do' can u please share your symptoms and onset? On the wiki page it states that VS is linked to CFS , LYME and auto immune disorders. CFS has been linked to a stomach virus . I find this very interesting , because I found a story about an infectious disease doc who discovered the link because his son suffered from CFS , he is now CURED. From CFS, the doc found that the VIRUS was still living in tissues of the gut, brain and muscle tissues of CFS who had committed suicide it did not SHOW UP in blood samples because it was not DESTROYING the cells ( causing the body yo create antibodies ) instead living INSIDE THEM! just like Lyme. I think maybe VS. Is in the same family .

Lyme disease as causes for VS or other visual disorders?

feeds@yuku.com (dunbarx) — Tue, 15 May 2012 18:01:52 PST

I read that even a negative test for lyme disease doesn't mean you can't have it. This worries me.
What if lyme disease is the reason for visual disorders such as visual snow or blue field entoptic phenomenon?
I remember I once had a test for lyme disease and the results weren't really clear. I was told I might have had it
but it's not acute. Then I had another test and it was negative.

The scam site has been edited into the Wikipedia entry for visual snow.

feeds@yuku.com (21stlvlrogue) — Tue, 15 May 2012 16:27:30 PST

I'm posting this here because I have no Wikipedia account and am not familiar with how to change Wikipedia.

But, if you go to the Wikipedia entry for Visual Snow and look at bottom under "External Links", there's a link to evisualsnow.com - the scam site that is selling a .pdf as the first link. The link is entitled "Treatment for visual snow".

Someone should delete that, and check and see if you can find who added it in the first place as this may give a clue to the creator of the scam site's identity.

I'm here for my wife

feeds@yuku.com (Battar) — Tue, 15 May 2012 15:05:03 PST

Hi,

I'm here for my wife, who has been suffering from VS recently is scared half senseless about it. So I've been doing some online research. Her eye doctor never mentioned VS, but she does have other eye problems (macular degeneration) and also suffers from epilepsy (mild, more or less under control). Boy did I learn a lot about medical science after I married her! Ah well, for better or for worse, as they say, could be worse. She can't see well enough to use the computer normally.

I've figured out so far that there isn't a cure for VS, that it isn't fun, and that the eye doctor isn't the person to turn to. A neurologist, maybe. Her biggest problem - how to remain calm about it and not wake up every morning thinking that the end is near?

Two Questions: Relating visual snow and retinal abnormalities

feeds@yuku.com (Ben1987X) — Sun, 13 May 2012 14:29:44 PST

I post this for someone who also has visual snow but doesn't master the English language So she asked if I could post it for her. This are her two questions:

I have read on this forum that people with a retinal abnormalities (for instance retinitis pigmentosa or salt and peper retinitis ) more often suffer from visual snow and/or different abnormalities. This is NOT caused, but why do people with retinal abnormalities have often visual snow? I am a bit near sighted and I have salt and peper retinitis because of Rubella during the pregnancy of my mother. My eye doctor thinks that visual snow is caused by mine retinal abnormality.

Before I go to sleep and close my eyes in my bed and then open them again. Then I see everything on and out flickering. (no flashes) Anybody have any idea?

With kind regards,

Ben www.visualsnow.nl

Symptom progression - Temporary or permanent?

feeds@yuku.com (chimpo2) — Sun, 13 May 2012 05:32:03 PST

Hi everyone, not posted on here In a long time, but been having a bit of a rough time vs wise as of late so thought I'd ask your opinions. Basically, my VS seems to be progressive, not in a gradual way. Up until about a week or do ago I hadn't even really thought about my vs for around a year, I was aware of its presence, but it didnt affect my life at all - felt like I'd finally beat it. Fast forward to a week or so ago, sat in the office at work and feel a bit 'off', get home and realise that my symptoms intensity had increased significantly - thicker static, more floaters, longer trails, louder tinnitus, very unpleasant. I am intrigued to sed if anyone else's VS progresses like this, I'm hoping that this is a temporary 'spike', but somehow I feel this is here to stay...

scary new symptoms. anyone ever had this??

feeds@yuku.com (laura87) — Sun, 13 May 2012 05:31:31 PST

As I've mentioned before I suffer from bad after images. So yesterday the sun was bright and as I got out of a car it caught my eye a few times. A few minutes later I noticed 4 blackish dots in my vision shaped in a diamond shape. A assumed these were after images from the sun and would go away in a few minutes. But they didn't and now its 18 hours later and they are still there. I am worried I have permanetely damanged my eye.

Hi, I am new here

feeds@yuku.com (fishmoon) — Sat, 12 May 2012 21:51:04 PST

I was pretty healthy till I took accutane for acne and developed all the visual symptoms and retinal disease called lattice degeneration.

My symptoms from worse to tolerable are

1- Floaters.
2- Visual snow in dark
3- decreased night vision.
4- Blue entopic phenomenon when looking at sky
5- shimmering in any light condition/as if looking through heatwaves
6- afterimages

I took accutane in folly of youth, as I wanted an end to my agony from severe acne in 2007. In 2012, I wish I had never taken accutane. Sometimes I want to commit suicide for this utter failure of mine in which I inflicted irreparable damage on my own eyes while I desperately wanted to be acne (and pain) free. Who knew I'd end up like this. My dermatologist never forewarned me that I am putting my eyes at huge risk.

Lattice degeneration has increased my risk of retinal detachment and blindness. Everyday when I wake up, I calculate every single move, just...

after images

feeds@yuku.com (laura87) — Fri, 11 May 2012 11:39:36 PST

Does anyone know of anything that can help reduce after images. Mine are getting worse week by week but all other symptoms seem to have stabalised.

Hppd VS visual snow?

feeds@yuku.com (vero) — Fri, 11 May 2012 01:40:00 PST

Can someone please explain the "main " difference between vs and hppd? ( not to sound stupid) but I keep seeing references to the hppd forum and things that have wk for them ? I don't understand the connection. Thank you.

Hi

feeds@yuku.com (Pauli535) — Thu, 10 May 2012 15:03:39 PST

Hi everyone I am new to this board and lookin fir advice. I have not been diagnosed with this but wonder if anyone recognises my symptoms. I feel my vision is blurry and a bit double - eye test was ok When my eyes are closed at nigt i see darker shapes in the blackness and i see white trails At different times during the day i see positive afterimages of a gem switching game i play even 24 hours after i last played it I keep seeing shadows out of the corners of my eyes I also see tiny specks moving aound at night with my eyes closed like snow If anyone can offer any advice or opinion i would appreciate it thanks ( sorry for spelling on a mobile with tiny keypad x)

70-95% reduction of symptoms (Keppra+Flunarizine)

feeds@yuku.com (chrissyfwb) — Thu, 10 May 2012 08:01:43 PST

http://hppdonline.com/ind...ppraflunarizine%2F

Vestibular Dysfunction

feeds@yuku.com (awalkerphoenix) — Tue, 08 May 2012 20:27:14 PST

I know this has been brought up before, but the more I wonder about the fact that I for sure have a vestibular problems, that it is either the cause of these visual disturbances, or at least adding to them. Like I have mentioned before, I for sure had a vestibular problem for a year before all these visual disturbances started. We know that certain injuries to the head or brain can cause odd visual phenomenons, but these injuries don't always have to be head trauma. My vestibular tests (3 of them) all showed a significant loss on my right side. They say a loss of 25% is a lot, mine was 73%, possibly 90%. When my vestibular problem first hit I had all the tall tale signs of dysfunction: Brain fog, dizziness, noises in my ear (popping and crackling) and balance problems. When your balance system is out of whack, your brain relies heavily on your vision. Perhaps this is why our, or at least my system is hyperaware. All of our problems (besides the visual symptoms, and of course the...

Weed

feeds@yuku.com (awalkerphoenix) — Tue, 08 May 2012 17:11:50 PST

I know this is a topic that has been discussed many times on here, but I still cannot wrap my head around it. I understand the people who try marijuana once and then get visual problems or HPPD, but I am someone who used marijuana for over 10 years before I ever noticed any visual problems, and I never once encountered anything like that. Then I start having the inner ear/vestibular problems that lasted for a year before I started noticing the visual stuff, mostly BFEP, floaters and sensitivity to light. The visuals also popped up when I tapered off a Tricyclic AD, which I think had to do with the visuals. I don't think the Tricyclic actually caused the visual stuff, I think I just became "aware" and fixated on these things when I no longer had an AD helping me out. So, in that regard, I still don't think weed caused these problems, I just think it is one of those things where everything you do now worries you that it is making things worse. I still enjoy getting high even though I...

Let's be practical about things.

feeds@yuku.com (balance) — Mon, 07 May 2012 01:16:21 PST

The way this condition/disease/ailment/gift (too some people) is looked at is subjective. Technically speaking this is a condition that is not "normal" to the way we should be functioning as 100% healthy physically and mentally humans. Visual snow and other commonly associated symptoms are in medical literature and linked to a dysfuntion (whatever that may be, hence the creation of a forum like this as to share ideas, opinions, medical updates and so forth)

Latly the hot topic seems to be people are getting annoyed over others calling this a gift, while I my self cannot call this condition a gift (as it has disabled me in aspects of my life) I will not discredit people that do find it to be a gift to them, I will also not put them down and come to a conclusion (without any proof) that they MUST be suffering from only a mild case of symptoms.

I don't think creating a forum because of petty arguements like this is a good idea, it will further divide everyone and topics...

I made a strange discovery

feeds@yuku.com (dunbarx) — Sun, 06 May 2012 02:28:04 PST

I stood there and looked down at a carpet and then I noticed that when I looked at this carpet, maybe due to the pattern of the carpet; it looked as if it was raining or snowing in the distance. It looked as if the air was moving. I think that certain surfaces make the visual snow much more recognizable to the person.
Anyway, what was strange is that I got a very sharp view of the visual snow when I looked at the carpet but when I took off my glasses everything became unsharp even the visual snow! How can that be? I mean it's logical that you see sharper with glasses but how is it possible that the visual snow itself also becomes unsharp without glasses? Isn't this strange?
Without glasses the visual snow simply looks as if the vision is shaking. I notice that there is some kind of movement but I cannot really see any "details" but when I put the glasses back on and looked at the carpet the visual snow itself became much more detailed and it wasn't simply a shaking but it was...

Visualsnowforum.com - building the first international VS forum

feeds@yuku.com (21stlvlrogue) — Fri, 04 May 2012 18:50:54 PST

For people who don't speak English as a first language:

If there are no visual snow forums in your native language, and you would like me to create a dedicated visual snow subforum on my site especially for your language, then let me know. I will create a subforum for your language and also make you a moderator of that subforum as well.

You can still post in the English subforums we have there as well, I just thought it would be nice to create forums for those languages that don't have them yet.

Brain Fog vs DP/DR

feeds@yuku.com (awalkerphoenix) — Thu, 03 May 2012 16:34:17 PST

I think I have read similar topics on here or another site, but I still have a hard time differentiating these two when I read people describing their symptoms. I started noticing what I call brain fog about a year before any visual started. At the same time I was having quick spins and problems with my inner ear. After having vestibular testing done three times, all three times concluding that I no doubt had a very large reduced response on my right side, it made sense that this brain fog was from the vestibular neuritis (or labrynthitis) that I was diagnosed with. If you look at symptoms for vestibular problems, cognitive problems are always on the list. A few doctor diagnosed me with migraines or MAV, which I never truly believed was my problem. Of course brain fog is another tall tale sign of migraines. Anyways, after a year of imbalance and cognitive problems, the visual kicked in when I started tapering off Nortryptaline which I was given for those supposed...

I am having some more tests done next week

feeds@yuku.com (awalkerphoenix) — Thu, 03 May 2012 16:22:47 PST

For last year I have lived with some of these horrible visual disturbances. Thankfully no VS (yet), but the floaters, light sensitivity and BFEP are making my life miserable. Not to mention the daily, constant brain fog and zombie like status that I have the first hour or so when I wake up. Anyhow, after reading posts on here for the last year I have tried a few things recently. Even though I did not want to use drugs (most of my visual problems started when I tapered off of Nortryptaline), I have been on Celexa for the last few months. It really helped out my anxiety, but has done little for the visual. There are no side effects either, but I think after I give it a few more weeks or months I might try another drug. I have my hopes set on Elavil. Even though it is the same family as Nort, I still do not know if the Nort actually caused my issues. One theory I have is perhaps the Nort was helping with supposed migraines (the reason I started taking it) and when I came off it...